Specialists in Iowa?

So happy to hear you had good luck in Iowa City! I felt your pain reading about you dealing with the West Des Moines ENT, the one I visited in WDM was not very kind either. Best of luck with the surgery, hope everything goes well for you!

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Glad you have a date; I know weā€™ve had other members with EDS, but canā€™t remember if any have had surgery, so the recovery could well be different for you. Hope that all goes well!

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@MomOf2
Congratulationsā€¦I am so happy that you got that second opinion! I am assuming you are going the external route since the doc is removing the entire SP? Looking forward to your post surgical posts. I have also been diagnosed with Fibro in the past and I wonder if it has just been the ES all along and they labeled it fibro because all the dozens of tests and such have never shown anything. Iā€™ve not heard of the EDS, but going to look it up now. Best to you - fingers crossed as well!

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Excellent news MomOf2! Will put your surgery date on my calendar & pray for you especially that day.
:two_hearts:

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Hi Hawk87. My first appointment with Dr. Van Daele is on Thursday this week. Like you, I havenā€™t had any luck in Des Moines. Although my speech pathologist at IowaENT in West Des Moines was the one who mentioned looking into Eagleā€™s Syndrome. She does great myofascial work on the neck. It helped me temporarily until she touched on something that angered my neck (hyoid area). Three months later and my neck is still flared up. Even though you ended up going a different route than treating ES, did you like Dr. Van Daele? How was his bed-side manner?

Momof2 ~

How did your surgery go & would you recommend the surgeon who did your ES surgery? We always like names to add to our doctorsā€™ list (unless itā€™s someone whoā€™s already on there :wink:).

I hope youā€™re doing great!