Hello and welcome to the forum @Nikkimm
So sorry to hear your going though TOS,Did they do a complete rib removal , or other types of decompression for the subclavian Vein?
I saw Dr Hepworth as well and have had the best results with him. He is pretty awesome to work with and has made me feel very comfortable as a patient while keeping me informed as to his findings and suggestions .
I also was put on plavix (blood thinner)after the IJV was seen to be an area of compression, and oh boy was it the best thing for me at the time.
I am not usually one to just pop pills and see if it works kind of person, but I was desperate for some sort of relief from the head pain and tinnitus. Because I saw a great reduction in symptoms, my doc told me this was a good indication the the decompression of the vein would likely also provide lasting relief. And so far so good
Dr H did my left syloidectomy as well as a right ohmahyoid resection to free up the right IJV compression.
Prior to my surgery with Dr H, Two vascular surgeons did assessment for TOS as well, but my compression was found mostly to be in the brachiocephalic vein, and told that the Right IJV compression was likely not the cause of the arm problems.
Told not classic TOS
the rib resection was the only option offered from the two TOS doctors who did the op in my state. I had suffered a loss of strength in my right arm and forearm felt cramped and got worse when I tried to grip or use my arm,
After my evaluation with Dr Hepworth For VES he suggested the omahyoid resection, due to adhesions as well as styloidectomy.
Although my mind had raced as to other options or maybe just do one area at a time of go back for another docs evaluation or etc…
I went ahead and put my faith in his abilities to read my individual needs and prescribe the best treatment he could offer.
Now going on just over a month after surgery,I have my arm strength back and my arm feels normal again after over a year of limited use and pain.
As well as major reduction in head pain and brain fog,etc.
It feels like I am finally getting my life back on track.
I am hopeful that he will be able to help you find some answers and that you are pain free soon
Wishing you the very best