Hi
Thanks cjeagle, that’s really helpful! I panicked quite a bit this week, because I didn’t have a clue who I had been referred to for the surgery. Over the last 5 years I’ve been lost in the system quite a few times, which has been a nightmare and it was obvious that it was happening again. After a lot of detective work I managed to contact Professor Thomas, the maxillofacial consultant who had made the diagnosis (only after me telling him) and referred me to a “colleague” of his, for surgery. He apologised, as “the system had actually lost the letter”. Anyway, I’m feeling much happier now, and exhausted. He is Mr Cellan Thomas, a maxillofacial surgeon at UHW Cardiff. He is part of the Head and Neck Cancer Support Team. I don’t know if he has done the operation before, but i will find out soon, I hope.
I am really grateful to you both and this community, which is so supportive!
I do have tinnitus cj, but not to the degree that it keeps me awake. That must be so debilitating. My main problem has been headaches / pains and fainting when I turn my head. Please let me know how you get on cjeagle and I will hopefully have an update soon.
Thanks again!
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