Bore da, cjeagle and Ka1!
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Seenie from ModSupport
March 31
Bore da, cjeagle and Ka1!
You know there’s private messaging here if you want it, don’t you? Just click on the person’s avatar and then on the “message” icon. The only thing is that our site blocks out telephone numbers and email addresses so you will have to find a way around that like " zero one six one three …" or “name(at)gmail.com”. I’m sure you’ll work it out.
Seenie from ModSupport
Hi Smithy, This week I started having problems with swallowing ( certain foods would get stuck in the back of my throat. I felt the area with my finger and can feel a very hard boney area). It’s nasty 
I could feel my left styloid in my throat & under the base of my tongue back by my throat, but my right one grew more straight down so I couldn’t feel it internally. I could feel both of them externally as well. Kinda creepy, I agree!! Surgery gave me my life back. I pray that you can find a surgeon you feel comfortable with so you can start recovering rather than continuing to be in pain.
Thank you Isaiah.
Hi Steph.
Just looking back over old forums and came across this. I am from Neath, but been seen at Morriston Mr H Whittet Ent Consultant Surgeon. I wasn’t aware a surgeon in Neath hospital has done this surgery, good to know.
I had another consultation with him and he was hopeless. He doesn’t believe in the surgery at all. Said he couldn’t even see the elongated processes on the cat scan even the radiographer had written it in his notes. I’m currently waiting to see someone else, not sure who it will be though.
Hi
That’s a shame. Maybe ask to see Mt Hall Whitestone entry consultant surgeon, Morriston hospital get a second opinion. You could ring sancta maria and see Mr Whitestone privately too.
Do you love local?
Hi Smithy, I’m undiagnosed, but have a bony protrusion sticking into my throat cavity just below the tonsil on my right side. I feel it in the back of my throat all the time & affects my swallowing a little. Also have chronic constriction feeling of the throat all the time & get breathless doing the slightest thing (lungs are fine), funny heads, dizziness, some ear ache, a bit of tongue numbness & nerve effects & certain movements of the head I feel a sharp something digging in my neck. Cant hold proper posture of head/neck as very uncomfortable & makes the symptoms worse. Feel sure it is ES & MaxilloF dismissed it. Seeing a neurologist next month (after waiting a year).
Have you got the styloid sticking in your throat too? do you have other symptoms? would like to hear your story! Thanks.
HI Pumpkin, I’m really interested to know what’s happened to you with seeing Mr Cellan Thomas, or anyone else regarding your ES, what is the exact problem and if you have had an operation & if it worked etc.?! I’m undiagnosed, but in Wales too & trying to look ahead as pretty sure I have ES. Thanks so much.
It’s been several years since @Smithy & @Pumpkin have posted. I do know that Pumpkin had surgery that was very successful for her, but I don’t recall who did her surgery. It was most likely Mr. Cellan Thomas though since he’s the only ES surgeon on our list for Wales.
The bone you feel sticking into your throat from behind your right tonsil would be your styloid process. I’m very sorry your MaxFac doctor was dismissive. This comes from not knowing about ES. The other symptoms you have are all seen w/ ES. Have you had a CT scan of your neck from skull base to hyoid bone? If not, can you get an appt w/ Mr. Cellan Thomas or perhaps the neurologist you’ll see soon would refer you for that. A CT with contrast can show if your styloids are causing vascular compression, too, as some of your symptoms possibly point to that.
Thanks very much Isaiah.
Appreciate your feedback very much.
Thanks for the news on Pumpkin.
Yes, when I first got to see the MF specialist, I didn’t know about ES at all, it took a lot of searching on the internet myself to eventually come across it, but since then am pretty sure quite a lot of my symptoms could be due to it. The most compelling evidence is the styloid protruding into the throat cavity - and recently I al so feel a sharp jabbing pain occasionally at certain angles moving the head (as well as the other symptoms like the constricted throat, feeling something, posture discomfort/pain and more, though I don’t get bad face pain like others seem to (though do have a lot of mouth issues with bad gum & bone erosion), though get bad heads.
I’ve been waiting many months again to see the same MF spct, as the GP said if I wanted to see another it would take even longer. But in the meantime, I was referred nearly a year ago to a neurologist for other reasons & at least that appt has come up for a few weeks time, so at least on both counts I know a lot more now & can focus in on the ES. Yes - from everything I’ve read & that you’ve said etc, a CT scan with contrast seems the thing to ask for, so I’ll push for that. Is there anything else that is best - are they CT scans with slices, or what? not sure of the different types or what I’d need exactly!?
I’m in North Wales, so if I needed attention it could even be better to go to Manchester way than down to Cardiff, depending. But thanks so much again!
It’s been mentioned that Mr Cellan Thomas is now director so not practising, but hopefully his team will have been trained about ES and in the surgery…
I hope that the neurologist is more helpful; if you ask for a CT, ask for it to cover from the base of the skull to the hyoid bone, and for it to be evaluated for ES, i.e. look at the length, thickness and angle of the styloid processes, and to look for any calcification of the stylo-hyoid ligaments. The CT automatically does slices, you don’t need to ask for anything like that.
Good luck, let us know how you get on!
Thanks so much, Jules.
You’ve been extremely helpful as usual…
Will report back in due course!
Go well & thanks again.