Pulsitile tinnitus has been my primary symptom but bouts with dizziness and vertigo have also been a problem. I’ve been concerned for awhile that my memory has been not great like trying to recall a word or the name of something. Brain fog, too, like having trouble getting organized or a kind of delay in processing something that someone is trying to tell me. My left side is noticeably weaker than my right side. Not sure why. I have a left hand tremor. The docs think it’s essential tremor. My dad had it but could ES be a part of it? Have had floaters in both eyes. I was told vitreous detachment. Left eye ended up as a vitreous hemmorage. I don’t have the pain that man members express fortunately. But, I’m wondering if any of these other symptoms could be connected with ES.
As @Jules has mentioned, pulsatile tinnitus, dizziness, vertigo, & brain fog i.e. the slower mental processing you’re experiencing are all symptoms of IJV compression. When an IJV or IJVs is/are compressed, deoxygenated blood & other waste materials can’t leave the brain at the rate they need to in order to keep up with the freshly deoxygenated blood flowing in through the internal carotid arteries. The result is intracranial hypertension/IH (high pressure in the brain) due to the “crimped” IJVs. It’s the IH that causes the type of symptoms you’re having.
Depending on how extensive your weakness is, single-sided weakness can be a symptom of carotid artery compression or irritation. We are always skeptical when a radiology report notes “mild” compression of vascular tissues because what looks mild in imaging can be more severe than it appears. Additionally, we’ve had any number of members who were told their vascular compression - IJV or ICA - was “mild” & wasn’t causing symptoms, yet they had significant symptoms that indicated otherwise & having their styloids shortened & vascular decompression done relieved the symptoms in many cases.
We’ve had members who’ve had everything from slight tremors to “dystonic storms” (seizure-like episodes w/o loss of consciousness) that were caused by the nerves their elongated styloids were irritating so your tremor could be the result of ES, & in many cases, the tremors stopped after the styloids were shortened & if vascular compression was present, once that was taken care of.
I’ve had the same trouble with my eyes except once my vitreous detachment stopped, all was ok. I’m thankful my retinas didn’t tear as that’s the most common scenario. I’m very sorry your situation ended up w/ a vitreous hemorrhage. That’s definitely scary.
You are blessed not to have the pain some members experience, however, your situation is very serious because of your IJV & possibly ICA compression symptoms. It seems for our members who have IJV or ICA compression that the symptoms those cause outweigh the nerve pain symptoms non-vascular ES patients suffer thus the nerve pain isn’t always as intense or obvious.
Thank you for your response. It is helpful to me in deciding what to do next. I greatly appreciate your input.
@bs9652 I had very similar symptoms as you including the vitreous detachments and the only pain was headache pain at the base of my skull. Everything except the pulsatile tinnitus went away after bilateral surgeries. Good luck with your journey.
I also has left side weakness. I think since the jugular blockage, the blood can’t go up smoothly, there are some blockage happening down stream, the vascular blockage irritates the nerve, cause the weakness. I just had surgery 3 days ago, still have the weakness at this moment, I hope it can get better.
I’m glad that you were able to have surgery @elainelee1970 , but it is very early days yet, you’re around the typical peak swelling time so this will make a difference… VES doctors have said it can take 2 months for the vascular system to readjust, and nerves can take up to a year to heal, it’s hard to be patient but unfortunately recovery can take a while. I hope that you’re not in too much pain and that your surgery is successful ![]()
@elainelee1970 - I’m glad your surgery is done. Was your internal jugular vein decompressed by just having your styloid shortened or did the surgeon also need to do a C1 shave?
As @Jules said, you’re in the period of peak post op swelling which can last till days 5 or 6 after surgery. Sleeping & resting with your head & shoulders elevated will help reduce swelling & icing your neck for 15 min. every 2 hours will also help. Make sure to put a thin cloth between your ice pack & skin to prevent ice burns. Make sure to take your pain medication on schedule, too, for at least the first week & even into the second if necessary.
I hope you get excellent results from your surgery even though healing can be slow.
Styloid removed and C1 shaved.
Thank you for the clarification. C2 isn’t usually the culprit in IJV compressions, C1 is, but we have had a few members that have had to have C2 shaved. Who did your surgery? It sounds like it was done quite thoroughly so that bodes well for a good outcome. ![]()
Prayers for a good outcome, take care of yourself
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