# Which first? Styloidectomy or lower jaw surgery? **URL:** \ **Category:** General\ **Created:** [August 24, 2026, 6:47pm UTC](https://forum.livingwitheagle.org/t/which-first-styloidectomy-or-lower-jaw-surgery/24108 "2026-08-24T18:47:54Z")\ **Posts on this page:** 1\ **Showing post:** 15

**Author:** ![Isaiah\_40\_31](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/isaiah_40_31/32/3054_2.png) [@Isaiah\_40\_31](https://forum.livingwitheagle.org/u/Isaiah_40_31)\ **Post date:** [September 11, 2026, 3:44am UTC](https://forum.livingwitheagle.org/t/which-first-styloidectomy-or-lower-jaw-surgery/24108/15 "2026-09-11T03:44:06Z")

@loki - I am so very sorry for what you’ve gone through since your first styloidectomy. I had a similar experience w/ first bite syndrome except mine started 5 days after my first styloidectomy. It also didn’t last through my whole meal, but the pain was excruciating for 10-15 seconds once it started. It gradually decreased in intensity over the first year post op. I am now 12 years out from my first ES surgery & am happy to say that my first bite symptoms are nearly gone now. That’s intended to give you hope that yours may settle down over time, too. I was offered nerve pain meds to help them settle, but I declined them. Perhaps that could help you? I recall from a previous post of yours that you’ve tried a lot of things including steroids & nothing seems to be helping reduce your pain/swelling. Have you considered finding a myofascial massage therapist? Some of our members who’ve had slower healing & more inflammation &/or tissue development have found some good relief via myofascial massage. Here are links to a couple of posts where @vcp02 talks about her integrative dentist experience. In the first one, @Snapple2020 who also has hEDS included an interesting chart, which might be helpful for you, about other compressions that are somewhat common for people who have hEDS: > [@Root cause](https://forum.livingwitheagle.org/t/root-cause/23693/13): > > Hello! @Chrickychricky @KMBS @Jules @Snapple2020 \*\*\*A bit late in the discussion and not full in context to the entire feed but… I wanted to share some insight on recent research I have been reviewing. As mentioned one of my biggest symptoms with Eagles was the “TMJ dysfunction” I suffered with for years prior. Treatment with mouth guards and Botox only exacerbated my pain and cause further dysfunction to my joint and jaw alignment. Post styloidectomy my muscle tension was quickly alleviat… > [@Which first? Styloidectomy or lower jaw surgery?](https://forum.livingwitheagle.org/t/which-first-styloidectomy-or-lower-jaw-surgery/24108/7): > > I’ll ask the moderators to chime in here, as my school of thought is solely based on my personal experience and not based off true expertise nor decades of cases assessments. \<3 Kmarty14: - Does potentially knowing the cause of the ossification affect which surgery or surgeries I get and in what order? To some degree, it’s like asking what came first, the chicken or the egg. At the end of the day, you have ossification in an area that is resulting in complications, i.e., vascular impingemen… If you aren’t familiar with the Zebras Underground site ([zebras.substack.com](http://zebras.substack.com)), it’s worth checking out. Lots of information relative to EDS. Another site that could be helpful for you is [bendybodiespodcast.com](http://bendybodiespodcast.com) or [Podcast — Hypermobility MD](https://www.hypermobilitymd.com/podcast/) (may be the same site). The podcasts are by Dr. Linda Bluestein who has hEDS herself. --- _[View the full topic](https://forum.livingwitheagle.org/t/which-first-styloidectomy-or-lower-jaw-surgery/24108)._