# \#internal-jugular-vei **URL:** https://forum.livingwitheagle.org/tag/internal-jugular-vei/5.md [Latest](https://forum.livingwitheagle.org/latest.md) · [Categories](https://forum.livingwitheagle.org/categories.md) · [Tags](https://forum.livingwitheagle.org/tags.md) --- ## [Advice on objective testing to confirm/exclude Vascular Eagles](https://forum.livingwitheagle.org/t/advice-on-objective-testing-to-confirm-exclude-vascular-eagles/24451)
**Author:** [@StanleysMum](https://forum.livingwitheagle.org/u/StanleysMum)\ **Replies:** 0\ **Last updated:** [September 24, 2026, 3:10am UTC](https://forum.livingwitheagle.org/t/advice-on-objective-testing-to-confirm-exclude-vascular-eagles/24451 "2026-09-24T03:10:46Z")
Hi everyone. I would really appreciate some advice on any objective testing you may have had done in relation to vascular Eagles. I’m based in New Zealand and Eagles Syndrome is very poorly understood here, some special… --- ## [Newly diagnosed with eagles, symptoms for over a decade](https://forum.livingwitheagle.org/t/newly-diagnosed-with-eagles-symptoms-for-over-a-decade/23911)
**Author:** [@Krixen](https://forum.livingwitheagle.org/u/Krixen)\ **Replies:** 29\ **Last updated:** [September 24, 2026, 1:25am UTC](https://forum.livingwitheagle.org/t/newly-diagnosed-with-eagles-symptoms-for-over-a-decade/23911 "2026-09-24T01:25:34Z")
I have recently been diagnosed with eagles syndrome. I have calcified elongaged styloids on both sides, although my right side is longer. I had a CT angiogram as the final diagnosis by a thoracic outlet specialist, but … --- ## [Anyone still dizzy 2 months after surgery?](https://forum.livingwitheagle.org/t/anyone-still-dizzy-2-months-after-surgery/24319)
**Author:** [@Anita](https://forum.livingwitheagle.org/u/Anita)\ **Replies:** 23\ **Last updated:** [September 17, 2026, 6:53pm UTC](https://forum.livingwitheagle.org/t/anyone-still-dizzy-2-months-after-surgery/24319 "2026-09-17T18:53:15Z")
Just wondering if anyone is still dizzy 2 months after IJV decompression? --- ## [Day of Surgery with Dr Peter Nakaji @ Honorhealth Scottsdale Osborne Medical Center at Scottsdal, AZ - June 17th, 2026](https://forum.livingwitheagle.org/t/day-of-surgery-with-dr-peter-nakaji-honorhealth-scottsdale-osborne-medical-center-at-scottsdal-az-june-17th-2026/23390)
**Author:** [@Tusker](https://forum.livingwitheagle.org/u/Tusker)\ **Replies:** 58\ **Last updated:** [September 16, 2026, 7:43pm UTC](https://forum.livingwitheagle.org/t/day-of-surgery-with-dr-peter-nakaji-honorhealth-scottsdale-osborne-medical-center-at-scottsdal-az-june-17th-2026/23390 "2026-09-16T19:43:25Z")
Hi all, I am about 6 hours post-op staying in a room at Honorhealth Scottsdale Osborne Medical Center overnight. I would like to share (what I remember) from my experience. Check in was at 8am. I got here at about 745a… --- ## [Post Surgery with Dr. Andreas Schmitz at Bel Etage Clinic](https://forum.livingwitheagle.org/t/post-surgery-with-dr-andreas-schmitz-at-bel-etage-clinic/23880)
**Author:** [@nuovo](https://forum.livingwitheagle.org/u/nuovo)\ **Replies:** 27\ **Last updated:** [September 16, 2026, 7:01am UTC](https://forum.livingwitheagle.org/t/post-surgery-with-dr-andreas-schmitz-at-bel-etage-clinic/23880 "2026-09-16T07:01:18Z")
Hello! I have never posted here but I have been part of the Forum for a couple months. I have been looking for a diagnosis since 2018. After lots and lots of doctors, operations, and medications, I finally found help in … --- ## [Just had SURGERY with Dr Kamran Aghayev (Bilateral styloidectomy+C1 shave)](https://forum.livingwitheagle.org/t/just-had-surgery-with-dr-kamran-aghayev-bilateral-styloidectomy-c1-shave/23583)
**Author:** [@IJVman](https://forum.livingwitheagle.org/u/IJVman)\ **Replies:** 48\ **Last updated:** [September 16, 2026, 12:18am UTC](https://forum.livingwitheagle.org/t/just-had-surgery-with-dr-kamran-aghayev-bilateral-styloidectomy-c1-shave/23583 "2026-09-16T00:18:36Z")
Surgery finished approx 4-5 hours ago. Surgery went fine, though a bit complicated duo to my anatomy, but no complications spotted so far (I will make a big post within a couple of weeks to share all the info about the e… --- ## [Scheduled for surgery: curious about realistic recovery](https://forum.livingwitheagle.org/t/scheduled-for-surgery-curious-about-realistic-recovery/24314)
**Author:** [@Mgi](https://forum.livingwitheagle.org/u/Mgi)\ **Replies:** 5\ **Last updated:** [September 12, 2026, 12:17pm UTC](https://forum.livingwitheagle.org/t/scheduled-for-surgery-curious-about-realistic-recovery/24314 "2026-09-12T12:17:24Z")
Hi there- I’m scheduled for surgery of my left jugular vein decompression mid October with Dr Hepworth. I live alone (with my dog) and am trying to line up support. Since the “preop appt” isn’t until a week before I wan… --- ## [Root cause](https://forum.livingwitheagle.org/t/root-cause/23693)
**Author:** [@KMBS](https://forum.livingwitheagle.org/u/KMBS)\ **Replies:** 18\ **Last updated:** [September 12, 2026, 3:43am UTC](https://forum.livingwitheagle.org/t/root-cause/23693 "2026-09-12T03:43:34Z")
I had a styloidectomy on one side for Eagle syndrome just over a year ago. I’m still struggling with headaches, but the pain is not as severe as it was so it definitely helped. It used to affect my vision and cause days … --- ## [Associated Possible Symptoms Left Side of Neck (mostly failed hyoid bone syndrome surgery)](https://forum.livingwitheagle.org/t/associated-possible-symptoms-left-side-of-neck-mostly-failed-hyoid-bone-syndrome-surgery/24293)
**Author:** [@asm8ax](https://forum.livingwitheagle.org/u/asm8ax)\ **Replies:** 20\ **Last updated:** [September 10, 2026, 12:34pm UTC](https://forum.livingwitheagle.org/t/associated-possible-symptoms-left-side-of-neck-mostly-failed-hyoid-bone-syndrome-surgery/24293 "2026-09-10T12:34:18Z")
Hi guys! For context I have the following conditions: heds (8/9 beighton), POTS (confirmed via tilt table), had hyoid bone syndrome in my neck (had surgery - they trimmed both sides. I would say it helped - especially m… --- ## [New here and working toward diagnosis](https://forum.livingwitheagle.org/t/new-here-and-working-toward-diagnosis/23534)
**Author:** [@Hellebore](https://forum.livingwitheagle.org/u/Hellebore)\ **Replies:** 31\ **Last updated:** [September 7, 2026, 10:12pm UTC](https://forum.livingwitheagle.org/t/new-here-and-working-toward-diagnosis/23534 "2026-09-07T22:12:32Z")
Hi all! Wanted to introduce myself and share whats going on. I’ve had a boney fit bump in my tonsil area for a long while. About 7 years? I had some initial pain which is how I discovered it but the pain went away and s… --- ## [New member, from energetic man to 24/7 suffering: looking for members help](https://forum.livingwitheagle.org/t/new-member-from-energetic-man-to-24-7-suffering-looking-for-members-help/20661)
**Author:** [@ryanab](https://forum.livingwitheagle.org/u/ryanab)\ **Replies:** 77\ **Last updated:** [September 7, 2026, 12:29pm UTC](https://forum.livingwitheagle.org/t/new-member-from-energetic-man-to-24-7-suffering-looking-for-members-help/20661 "2026-09-07T12:29:21Z")
I am really happy I found out about this group a few weeks ago, after a really bad experience with the medical world (dismissing, gaslighting, lack of knowledge…) I started recently to take my health problems in my own h… --- ## [Probable Causes of IJV compression by C1?](https://forum.livingwitheagle.org/t/probable-causes-of-ijv-compression-by-c1/23884)
**Author:** [@nemo](https://forum.livingwitheagle.org/u/nemo)\ **Replies:** 186\ **Last updated:** [September 5, 2026, 5:08pm UTC](https://forum.livingwitheagle.org/t/probable-causes-of-ijv-compression-by-c1/23884 "2026-09-05T17:08:41Z")
Hi, Im Javier and I have bilateral compression of the IJVs by the C1 transverse processes, and I’m trying to understand the possible causes. It all started after a significant amount of physical strain while I was worki… --- ## [My First Post - Evaluating Surgeons](https://forum.livingwitheagle.org/t/my-first-post-evaluating-surgeons/23954)
**Author:** [@TeresaJo](https://forum.livingwitheagle.org/u/TeresaJo)\ **Replies:** 23\ **Last updated:** [September 4, 2026, 12:36am UTC](https://forum.livingwitheagle.org/t/my-first-post-evaluating-surgeons/23954 "2026-09-04T00:36:12Z")
Hello, This is my first post here. I have really benefitted by reading others experiences. Thank you for sharing and for the folks who make all this happen. You are impacting people’s lives! I have had two neuroradiolog… --- ## [Dr. Hepworth Surgery Yesterday - Post op Report Today](https://forum.livingwitheagle.org/t/dr-hepworth-surgery-yesterday-post-op-report-today/17403)
**Author:** [@Isaiah\_40\_31](https://forum.livingwitheagle.org/u/Isaiah_40_31)\ **Replies:** 89\ **Last updated:** [August 28, 2026, 8:03pm UTC](https://forum.livingwitheagle.org/t/dr-hepworth-surgery-yesterday-post-op-report-today/17403 "2026-08-28T20:03:14Z")
First I want to thank all of you for your prayers, healing wishes, & for thinking of me during my surgery yesterday. I know many of you have been following my IJV compression story. My surgery with Dr. Hepworth yesterda… --- ## [Sleeping and head pressure - what do you do?](https://forum.livingwitheagle.org/t/sleeping-and-head-pressure-what-do-you-do/24128)
**Author:** [@Wafer16](https://forum.livingwitheagle.org/u/Wafer16)\ **Replies:** 1\ **Last updated:** [August 26, 2026, 9:31am UTC](https://forum.livingwitheagle.org/t/sleeping-and-head-pressure-what-do-you-do/24128 "2026-08-26T09:31:15Z")
Hi, I am fairly new to all of this (the last yr) and I’ve been sleeping with a cervical pillow that has a curve sized to my neck. Back in May, an angiogram showed complete compression of jugular when I move my head to th… --- ## [What reports do you upload to Dr. Hepworth](https://forum.livingwitheagle.org/t/what-reports-do-you-upload-to-dr-hepworth/24114)
**Author:** [@Wafer16](https://forum.livingwitheagle.org/u/Wafer16)\ **Replies:** 4\ **Last updated:** [August 26, 2026, 5:45am UTC](https://forum.livingwitheagle.org/t/what-reports-do-you-upload-to-dr-hepworth/24114 "2026-08-26T05:45:42Z")
Hi, I need to upload my reports to Dr. Hepworth’s portal. What reports did you upload? I’ve had so much testing at this point, I don’t want to upload it all because it will cost me a fortune. I was going to upload cerebr… --- ## [Best pillow wedge](https://forum.livingwitheagle.org/t/best-pillow-wedge/24115)
**Author:** [@Wafer16](https://forum.livingwitheagle.org/u/Wafer16)\ **Replies:** 1\ **Last updated:** [August 25, 2026, 1:18pm UTC](https://forum.livingwitheagle.org/t/best-pillow-wedge/24115 "2026-08-25T13:18:41Z")
Anyone found the perfect pillow wedge to sleep more upright? I’ve been sleeping flat with a cervical pillow and I am being woken up with horrific head pressure which is killing my sleep. Suggestions? --- ## [Can Eagle Syndrome Cause Strongly Jaw Modulated Tinnitus? My Story](https://forum.livingwitheagle.org/t/can-eagle-syndrome-cause-strongly-jaw-modulated-tinnitus-my-story/24048)
**Author:** [@AkitasRule](https://forum.livingwitheagle.org/u/AkitasRule)\ **Replies:** 11\ **Last updated:** [August 25, 2026, 12:34am UTC](https://forum.livingwitheagle.org/t/can-eagle-syndrome-cause-strongly-jaw-modulated-tinnitus-my-story/24048 "2026-08-25T00:34:10Z")
I’m new to the forum and wanted to introduce myself and see whether anyone here has had a similar situation, particularly involving tinnitus. My Story: Elongated/calcified styloids, severe somatic tinnitus, rear jaw/ne… --- ## [107 days after IJV decompression with Dr. Kamran Aghayev](https://forum.livingwitheagle.org/t/107-days-after-ijv-decompression-with-dr-kamran-aghayev/24036)
**Author:** [@Rehri](https://forum.livingwitheagle.org/u/Rehri)\ **Replies:** 14\ **Last updated:** [August 23, 2026, 3:35pm UTC](https://forum.livingwitheagle.org/t/107-days-after-ijv-decompression-with-dr-kamran-aghayev/24036 "2026-08-23T15:35:22Z")
Hello, everyone! It has been a while since my surgery now, and I have had great results of the IJV decompression surgery with Dr. Kamran Aghayev. This happened at Basari hospital in Istanbul the 3rd of May, 2026. I am … --- ## [Finally!](https://forum.livingwitheagle.org/t/finally/24072)
**Author:** [@htren](https://forum.livingwitheagle.org/u/htren)\ **Replies:** 7\ **Last updated:** [August 23, 2026, 3:24pm UTC](https://forum.livingwitheagle.org/t/finally/24072 "2026-08-23T15:24:42Z")
Finally had my right IJV decompression surgery, with styloid process and C1 transverse process resected on Friday with Dr Rao and Dr Elliot. Not sure if folks are interested in the “inards” but I’ll post the video Dr El… --- ## [Leftover 1.5cm between arteries and new complications post 5 years after bilateral styloidectomy](https://forum.livingwitheagle.org/t/leftover-1-5cm-between-arteries-and-new-complications-post-5-years-after-bilateral-styloidectomy/23692)
**Author:** [@Asumhannah](https://forum.livingwitheagle.org/u/Asumhannah)\ **Replies:** 34\ **Last updated:** [August 23, 2026, 1:18am UTC](https://forum.livingwitheagle.org/t/leftover-1-5cm-between-arteries-and-new-complications-post-5-years-after-bilateral-styloidectomy/23692 "2026-08-23T01:18:10Z")
Hey everyone! So I had surgery back in 2021 for my Eagles syndrome and they removed over 6 cm of Bones from both sides of my throat and shaved it down at the styloid process as well. Everything got much better I mean bef… --- ## [Worse than I thought](https://forum.livingwitheagle.org/t/worse-than-i-thought/23738)
**Author:** [@SCJeff](https://forum.livingwitheagle.org/u/SCJeff)\ **Replies:** 55\ **Last updated:** [August 21, 2026, 6:24pm UTC](https://forum.livingwitheagle.org/t/worse-than-i-thought/23738 "2026-08-21T18:24:43Z")
I have been living with eagle’s syndrome for over 11 years. During my junior year of college I was struck with many painful and concerning symptoms mainly on the front right of my neck and jaw. I met with numerous doctor… --- ## [Where can I get a CTV or MRV in the Northeast](https://forum.livingwitheagle.org/t/where-can-i-get-a-ctv-or-mrv-in-the-northeast/23886)
**Author:** [@Veganchrissy](https://forum.livingwitheagle.org/u/Veganchrissy)\ **Replies:** 15\ **Last updated:** [August 19, 2026, 7:04pm UTC](https://forum.livingwitheagle.org/t/where-can-i-get-a-ctv-or-mrv-in-the-northeast/23886 "2026-08-19T19:04:15Z")
I’m coming up on my 6 week post-surgery check-in with Dr. Nakaji and I’ll need to locate imaging. I’m wondering if any of you know where I could get these tests in the New York - New Jersey - Boston area? If not, where’s… --- ## [C1 transverse process resection + styloidectomy w/ Dr Axon - any previous experiences out there?](https://forum.livingwitheagle.org/t/c1-transverse-process-resection-styloidectomy-w-dr-axon-any-previous-experiences-out-there/23944)
**Author:** [@CoffeeCup](https://forum.livingwitheagle.org/u/CoffeeCup)\ **Replies:** 1\ **Last updated:** [August 14, 2026, 3:08pm UTC](https://forum.livingwitheagle.org/t/c1-transverse-process-resection-styloidectomy-w-dr-axon-any-previous-experiences-out-there/23944 "2026-08-14T15:08:39Z")
Hi all, I wanted to ask if there are other patients active in this community who have had C1 process resection + styloidectomy with Dr Axon in Cambridge, UK? I am considering my options and surgeons and want to hear abo… --- ## [Seeking second opinion surgeons](https://forum.livingwitheagle.org/t/seeking-second-opinion-surgeons/23878)
**Author:** [@JugBug](https://forum.livingwitheagle.org/u/JugBug)\ **Replies:** 15\ **Last updated:** [August 13, 2026, 12:29am UTC](https://forum.livingwitheagle.org/t/seeking-second-opinion-surgeons/23878 "2026-08-13T00:29:51Z")
New to this community but been having these symptoms for years. Sorry if my questions have already been answered. Feel free to link me to another post if need. Diagnoses is severe compression of the internal jugular vei… --- ## [Fractured left ossified ligament…no pain but friction while swallowing. Surgery in January to remove the styloid process and the full stylohyoid ligament. Feeling somewhat anxious as not guaranteed it will fully address the symptoms](https://forum.livingwitheagle.org/t/fractured-left-ossified-ligament-no-pain-but-friction-while-swallowing-surgery-in-january-to-remove-the-styloid-process-and-the-full-stylohyoid-ligament-feeling-somewhat-anxious-as-not-guaranteed-it-will-fully-address-the-symptoms/23857)
**Author:** [@Xmun](https://forum.livingwitheagle.org/u/Xmun)\ **Replies:** 8\ **Last updated:** [August 10, 2026, 10:38pm UTC](https://forum.livingwitheagle.org/t/fractured-left-ossified-ligament-no-pain-but-friction-while-swallowing-surgery-in-january-to-remove-the-styloid-process-and-the-full-stylohyoid-ligament-feeling-somewhat-anxious-as-not-guaranteed-it-will-fully-address-the-symptoms/23857 "2026-08-10T22:38:27Z")
--- ## [Jugier Vien Stenosis - Deciding Between Surgeons (Dr. Edward Damrose & Dr. Andreas Schmitz)](https://forum.livingwitheagle.org/t/jugier-vien-stenosis-deciding-between-surgeons-dr-edward-damrose-dr-andreas-schmitz/23868)
**Author:** [@kboi](https://forum.livingwitheagle.org/u/kboi)\ **Replies:** 3\ **Last updated:** [August 10, 2026, 3:12am UTC](https://forum.livingwitheagle.org/t/jugier-vien-stenosis-deciding-between-surgeons-dr-edward-damrose-dr-andreas-schmitz/23868 "2026-08-10T03:12:49Z")
Hello everyone, I’ve been suffering from severe symptoms for the past 4 years. During that time, I was repeatedly diagnosed with migraine with aura, despite telling doctors that I believed something else was wrong. A ra… --- ## [Sufficient imaging for appt with Dr. Constantino?](https://forum.livingwitheagle.org/t/sufficient-imaging-for-appt-with-dr-constantino/23495)
**Author:** [@squidalltheway](https://forum.livingwitheagle.org/u/squidalltheway)\ **Replies:** 17\ **Last updated:** [August 10, 2026, 1:51am UTC](https://forum.livingwitheagle.org/t/sufficient-imaging-for-appt-with-dr-constantino/23495 "2026-08-10T01:51:08Z")
Hi there, I have my consultation appointment with Dr. Constantino next month, and I know he will direct me at that point but am just trying to anticipate ahead of time if I am going to need additional/different imaging … --- ## [4 Days Post Op Decompression Experience - Does it get worse before it gets better?](https://forum.livingwitheagle.org/t/4-days-post-op-decompression-experience-does-it-get-worse-before-it-gets-better/22940)
**Author:** [@carina](https://forum.livingwitheagle.org/u/carina)\ **Replies:** 67\ **Last updated:** [August 5, 2026, 3:37pm UTC](https://forum.livingwitheagle.org/t/4-days-post-op-decompression-experience-does-it-get-worse-before-it-gets-better/22940 "2026-08-05T15:37:28Z")
I had my more symptomatic side done on Monday to relieve severe IJV compression - c1 transverse process resection, styloid removed (measured about 4.5cm), posterior belly of digastric removed, and two enlarged lymph node… --- ## [Some symptoms returned after 2nd surgery](https://forum.livingwitheagle.org/t/some-symptoms-returned-after-2nd-surgery/23787)
**Author:** [@KarenG](https://forum.livingwitheagle.org/u/KarenG)\ **Replies:** 5\ **Last updated:** [July 31, 2026, 2:36am UTC](https://forum.livingwitheagle.org/t/some-symptoms-returned-after-2nd-surgery/23787 "2026-07-31T02:36:18Z")
My son, Ben had his second styloidectomy on May 8, when Dr. Fargen operated on the left side. Unfortunately, some of his symptoms have returned, and he is still having the episodes that have been referred to as “pseudo-s… [Next page](https://forum.livingwitheagle.org/tag/internal-jugular-vei/5.md?match_all_tags=true&page=1&tags%5B%5D=internal-jugular-vei)