# \#symptoms **URL:** https://forum.livingwitheagle.org/tag/symptoms/3.md [Latest](https://forum.livingwitheagle.org/latest.md) · [Categories](https://forum.livingwitheagle.org/categories.md) · [Tags](https://forum.livingwitheagle.org/tags.md) --- ## [Protecting Vulnerable Necks during Decompression Surgery and BTO](https://forum.livingwitheagle.org/t/protecting-vulnerable-necks-during-decompression-surgery-and-bto/24457)
**Author:** [@mogulmama](https://forum.livingwitheagle.org/u/mogulmama)\ **Replies:** 1\ **Last updated:** [September 25, 2026, 10:41am UTC](https://forum.livingwitheagle.org/t/protecting-vulnerable-necks-during-decompression-surgery-and-bto/24457 "2026-09-25T10:41:00Z")
Hi Everyone, For those of you with CCI, were there particular measures taken durng surgery opr the BTO to insure your neck was well positioned and CCI was not made worse? Thanks so much! --- ## [New user, any opinions on CT images and best attempt at self-diagnosis?](https://forum.livingwitheagle.org/t/new-user-any-opinions-on-ct-images-and-best-attempt-at-self-diagnosis/12694)
**Author:** [@Mclean](https://forum.livingwitheagle.org/u/Mclean)\ **Replies:** 17\ **Last updated:** [September 24, 2026, 8:27pm UTC](https://forum.livingwitheagle.org/t/new-user-any-opinions-on-ct-images-and-best-attempt-at-self-diagnosis/12694 "2026-09-24T20:27:10Z")
I really look forward to participating on this forum. There is so much here I can relate to, but I’ve been unable to read through as much as I’d like due to a recent illness and ongoing time limitation. Unfortunately, … --- ## [Advice on objective testing to confirm/exclude Vascular Eagles](https://forum.livingwitheagle.org/t/advice-on-objective-testing-to-confirm-exclude-vascular-eagles/24451)
**Author:** [@StanleysMum](https://forum.livingwitheagle.org/u/StanleysMum)\ **Replies:** 3\ **Last updated:** [September 24, 2026, 4:54pm UTC](https://forum.livingwitheagle.org/t/advice-on-objective-testing-to-confirm-exclude-vascular-eagles/24451 "2026-09-24T16:54:48Z")
Hi everyone. I would really appreciate some advice on any objective testing you may have had done in relation to vascular Eagles. I’m based in New Zealand and Eagles Syndrome is very poorly understood here, some special… --- ## [I'm desperate- does this sound like Eagles Syndrome?](https://forum.livingwitheagle.org/t/im-desperate-does-this-sound-like-eagles-syndrome/24430)
**Author:** [@jessicah](https://forum.livingwitheagle.org/u/jessicah)\ **Replies:** 18\ **Last updated:** [September 24, 2026, 1:52am UTC](https://forum.livingwitheagle.org/t/im-desperate-does-this-sound-like-eagles-syndrome/24430 "2026-09-24T01:52:31Z")
Just looking for advice I suffer severely with auditory symptoms I hear my heartbeat nonstop left ear My ear feels clogged off and on all day with severe pressure Ear pops a lot. If i turn my neck or any little movem… --- ## [Went to the dentist now more pain](https://forum.livingwitheagle.org/t/went-to-the-dentist-now-more-pain/24416)
**Author:** [@petrichorrr](https://forum.livingwitheagle.org/u/petrichorrr)\ **Replies:** 5\ **Last updated:** [September 21, 2026, 6:04pm UTC](https://forum.livingwitheagle.org/t/went-to-the-dentist-now-more-pain/24416 "2026-09-21T18:04:10Z")
Went to the dentist finally to get some fillings done on my lower right side. The first day was bad. The second day not so bad. And now the third day my ear and my styloid/jaw area hurt so much I can’t stand it, I haven’… --- ## [Was it difficult to get diagnosed?](https://forum.livingwitheagle.org/t/was-it-difficult-to-get-diagnosed/23457)
**Author:** [@SwampFrolicker](https://forum.livingwitheagle.org/u/SwampFrolicker)\ **Replies:** 53\ **Last updated:** [September 15, 2026, 2:04pm UTC](https://forum.livingwitheagle.org/t/was-it-difficult-to-get-diagnosed/23457 "2026-09-15T14:04:11Z")
Hi everyone, So, I have been having symptoms for years. I could listen them, but it’s basically a book - I’ll list it at the end if that’s interesting. Anyways, I’ve been to so many doctors who just blow me off and no o… --- ## [Got a first X ray with calcified styloid process, need ur help](https://forum.livingwitheagle.org/t/got-a-first-x-ray-with-calcified-styloid-process-need-ur-help/23416)
**Author:** [@junonbss](https://forum.livingwitheagle.org/u/junonbss)\ **Replies:** 112\ **Last updated:** [September 14, 2026, 5:58pm UTC](https://forum.livingwitheagle.org/t/got-a-first-x-ray-with-calcified-styloid-process-need-ur-help/23416 "2026-09-14T17:58:53Z")
Hello everyone, I’m a 28-year-old woman from France, and I’m looking for advice because my dentist recently suspected Eagle syndrome after reviewing my panoramic X-ray. He found a calcified left stylohyoid ligament and … --- ## [6 Week Post-Op With Dr. Osborne](https://forum.livingwitheagle.org/t/6-week-post-op-with-dr-osborne/24315)
**Author:** [@sarahmarie5](https://forum.livingwitheagle.org/u/sarahmarie5)\ **Replies:** 5\ **Last updated:** [September 14, 2026, 2:53pm UTC](https://forum.livingwitheagle.org/t/6-week-post-op-with-dr-osborne/24315 "2026-09-14T14:53:15Z")
Hi everyone, I’m about 6 weeks post-op from my right styloid ligament resection performed by Dr. Osborne. I’ve been waiting for the right time to write this out and post it on this forum. IT’S BEEN A WILD RIDE and I’ve b… --- ## [Learning about options](https://forum.livingwitheagle.org/t/learning-about-options/21826)
**Author:** [@RickAZ](https://forum.livingwitheagle.org/u/RickAZ)\ **Replies:** 53\ **Last updated:** [September 13, 2026, 2:56pm UTC](https://forum.livingwitheagle.org/t/learning-about-options/21826 "2026-09-13T14:56:28Z")
Hi all, I’ve been reading quite a bit on this forum. After a very long time of sporadic diagnoses (HBP, migraines, sleep apnea, etc) but nothing to connect them together, I’ve recently gotten an IJVCs diagnosis that may … --- ## [How far back has VES affected my life?](https://forum.livingwitheagle.org/t/how-far-back-has-ves-affected-my-life/24304)
**Author:** [@sierraismagic](https://forum.livingwitheagle.org/u/sierraismagic)\ **Replies:** 6\ **Last updated:** [September 10, 2026, 7:47pm UTC](https://forum.livingwitheagle.org/t/how-far-back-has-ves-affected-my-life/24304 "2026-09-10T19:47:57Z")
Hi everyone! I was recently diagnosed with VES after nearly 18 months of fighting Kaiser and advocating for myself every step of the way. I feel like one of the lucky ones after some of the horror stories I’ve heard ab… --- ## [Associated Possible Symptoms Left Side of Neck (mostly failed hyoid bone syndrome surgery)](https://forum.livingwitheagle.org/t/associated-possible-symptoms-left-side-of-neck-mostly-failed-hyoid-bone-syndrome-surgery/24293)
**Author:** [@asm8ax](https://forum.livingwitheagle.org/u/asm8ax)\ **Replies:** 20\ **Last updated:** [September 10, 2026, 12:34pm UTC](https://forum.livingwitheagle.org/t/associated-possible-symptoms-left-side-of-neck-mostly-failed-hyoid-bone-syndrome-surgery/24293 "2026-09-10T12:34:18Z")
Hi guys! For context I have the following conditions: heds (8/9 beighton), POTS (confirmed via tilt table), had hyoid bone syndrome in my neck (had surgery - they trimmed both sides. I would say it helped - especially m… --- ## [New here and working toward diagnosis](https://forum.livingwitheagle.org/t/new-here-and-working-toward-diagnosis/23534)
**Author:** [@Hellebore](https://forum.livingwitheagle.org/u/Hellebore)\ **Replies:** 31\ **Last updated:** [September 7, 2026, 10:12pm UTC](https://forum.livingwitheagle.org/t/new-here-and-working-toward-diagnosis/23534 "2026-09-07T22:12:32Z")
Hi all! Wanted to introduce myself and share whats going on. I’ve had a boney fit bump in my tonsil area for a long while. About 7 years? I had some initial pain which is how I discovered it but the pain went away and s… --- ## [New member, from energetic man to 24/7 suffering: looking for members help](https://forum.livingwitheagle.org/t/new-member-from-energetic-man-to-24-7-suffering-looking-for-members-help/20661)
**Author:** [@ryanab](https://forum.livingwitheagle.org/u/ryanab)\ **Replies:** 77\ **Last updated:** [September 7, 2026, 12:29pm UTC](https://forum.livingwitheagle.org/t/new-member-from-energetic-man-to-24-7-suffering-looking-for-members-help/20661 "2026-09-07T12:29:21Z")
I am really happy I found out about this group a few weeks ago, after a really bad experience with the medical world (dismissing, gaslighting, lack of knowledge…) I started recently to take my health problems in my own h… --- ## [Successful Surgery for severe Vagus Nerve Compression](https://forum.livingwitheagle.org/t/successful-surgery-for-severe-vagus-nerve-compression/17250)
**Author:** [@GrnyAny](https://forum.livingwitheagle.org/u/GrnyAny)\ **Replies:** 97\ **Last updated:** [September 6, 2026, 7:43pm UTC](https://forum.livingwitheagle.org/t/successful-surgery-for-severe-vagus-nerve-compression/17250 "2026-09-06T19:43:43Z")
I am a Rare Warrior and this is my battle story! In August of 2021 I was diagnosed with Eagle Syndrome. February 16, 2022 I had a successful external bilateral styloidectomy. An unresolving case of laryngitis led to my d… --- ## [Tinnitus and jugular compression](https://forum.livingwitheagle.org/t/tinnitus-and-jugular-compression/8203)
**Author:** [@Henry](https://forum.livingwitheagle.org/u/Henry)\ **Replies:** 17\ **Last updated:** [September 5, 2026, 11:10pm UTC](https://forum.livingwitheagle.org/t/tinnitus-and-jugular-compression/8203 "2026-09-05T23:10:59Z")
I am wondering if folks with styloidgenic jugular compression have experienced tinnitus ( non pulsating) and whether it was cured or improved with removal of one or both styloids. Thank you. Henry. --- ## [I have Eagle syndrome, but my symptoms are atypical. Should I have surgery? Help!](https://forum.livingwitheagle.org/t/i-have-eagle-syndrome-but-my-symptoms-are-atypical-should-i-have-surgery-help/23847)
**Author:** [@Javi47](https://forum.livingwitheagle.org/u/Javi47)\ **Replies:** 29\ **Last updated:** [September 2, 2026, 11:53pm UTC](https://forum.livingwitheagle.org/t/i-have-eagle-syndrome-but-my-symptoms-are-atypical-should-i-have-surgery-help/23847 "2026-09-02T23:53:23Z")
Hi everyone, my name is Javier, I’m 36 years old, and I’m writing this post to see if anyone here has experienced symptoms or a case similar to mine. I would really appreciate hearing about your experiences or opinions. … --- ## [Sleeping and head pressure - what do you do?](https://forum.livingwitheagle.org/t/sleeping-and-head-pressure-what-do-you-do/24128)
**Author:** [@Wafer16](https://forum.livingwitheagle.org/u/Wafer16)\ **Replies:** 1\ **Last updated:** [August 26, 2026, 9:31am UTC](https://forum.livingwitheagle.org/t/sleeping-and-head-pressure-what-do-you-do/24128 "2026-08-26T09:31:15Z")
Hi, I am fairly new to all of this (the last yr) and I’ve been sleeping with a cervical pillow that has a curve sized to my neck. Back in May, an angiogram showed complete compression of jugular when I move my head to th… --- ## [Can Eagle Syndrome Cause Strongly Jaw Modulated Tinnitus? My Story](https://forum.livingwitheagle.org/t/can-eagle-syndrome-cause-strongly-jaw-modulated-tinnitus-my-story/24048)
**Author:** [@AkitasRule](https://forum.livingwitheagle.org/u/AkitasRule)\ **Replies:** 11\ **Last updated:** [August 25, 2026, 12:34am UTC](https://forum.livingwitheagle.org/t/can-eagle-syndrome-cause-strongly-jaw-modulated-tinnitus-my-story/24048 "2026-08-25T00:34:10Z")
I’m new to the forum and wanted to introduce myself and see whether anyone here has had a similar situation, particularly involving tinnitus. My Story: Elongated/calcified styloids, severe somatic tinnitus, rear jaw/ne… --- ## [Leftover 1.5cm between arteries and new complications post 5 years after bilateral styloidectomy](https://forum.livingwitheagle.org/t/leftover-1-5cm-between-arteries-and-new-complications-post-5-years-after-bilateral-styloidectomy/23692)
**Author:** [@Asumhannah](https://forum.livingwitheagle.org/u/Asumhannah)\ **Replies:** 34\ **Last updated:** [August 23, 2026, 1:18am UTC](https://forum.livingwitheagle.org/t/leftover-1-5cm-between-arteries-and-new-complications-post-5-years-after-bilateral-styloidectomy/23692 "2026-08-23T01:18:10Z")
Hey everyone! So I had surgery back in 2021 for my Eagles syndrome and they removed over 6 cm of Bones from both sides of my throat and shaved it down at the styloid process as well. Everything got much better I mean bef… --- ## [Did symptoms ever vary in intensity or come and go?](https://forum.livingwitheagle.org/t/did-symptoms-ever-vary-in-intensity-or-come-and-go/24060)
**Author:** [@Dlm1969](https://forum.livingwitheagle.org/u/Dlm1969)\ **Replies:** 5\ **Last updated:** [August 21, 2026, 7:16pm UTC](https://forum.livingwitheagle.org/t/did-symptoms-ever-vary-in-intensity-or-come-and-go/24060 "2026-08-21T19:16:50Z")
Hello. New member here. No diagnosis and I’m not sure it’s ES but it sure seems like it could be. I originally went to ENT for a feeling of tightness in my throat, strained voice and ended up with diagnosis of muscle te… --- ## [Where can I get a CTV or MRV in the Northeast](https://forum.livingwitheagle.org/t/where-can-i-get-a-ctv-or-mrv-in-the-northeast/23886)
**Author:** [@Veganchrissy](https://forum.livingwitheagle.org/u/Veganchrissy)\ **Replies:** 15\ **Last updated:** [August 19, 2026, 7:04pm UTC](https://forum.livingwitheagle.org/t/where-can-i-get-a-ctv-or-mrv-in-the-northeast/23886 "2026-08-19T19:04:15Z")
I’m coming up on my 6 week post-surgery check-in with Dr. Nakaji and I’ll need to locate imaging. I’m wondering if any of you know where I could get these tests in the New York - New Jersey - Boston area? If not, where’s… --- ## [TMJ post surgery](https://forum.livingwitheagle.org/t/tmj-post-surgery/15743)
**Author:** [@elijah](https://forum.livingwitheagle.org/u/elijah)\ **Replies:** 46\ **Last updated:** [August 19, 2026, 3:10pm UTC](https://forum.livingwitheagle.org/t/tmj-post-surgery/15743 "2026-08-19T15:10:14Z")
Hi everyone, It’s me again. I had yet another follow-up with Dr Hackman and Botox injections, and he thinks the surgery may have unmasked an underlying TMJ issue which is why I am still having pain in the TMJ surgical s… --- ## [Almost 3 years with unknown diagnose. Potential Eagle, Throat pain. Help!](https://forum.livingwitheagle.org/t/almost-3-years-with-unknown-diagnose-potential-eagle-throat-pain-help/23039)
**Author:** [@Algobe](https://forum.livingwitheagle.org/u/Algobe)\ **Replies:** 48\ **Last updated:** [August 17, 2026, 2:10pm UTC](https://forum.livingwitheagle.org/t/almost-3-years-with-unknown-diagnose-potential-eagle-throat-pain-help/23039 "2026-08-17T14:10:09Z")
Hello, In 2022, I began noticing a strange sensation in my throat: a kind of brief, random spasm that was not painful, as if something contracted for a second. I went to an ENT specialist, who told me that anatomically … --- ## [Is it eagels?](https://forum.livingwitheagle.org/t/is-it-eagels/23936)
**Author:** [@LitenDam](https://forum.livingwitheagle.org/u/LitenDam)\ **Replies:** 8\ **Last updated:** [August 15, 2026, 5:56pm UTC](https://forum.livingwitheagle.org/t/is-it-eagels/23936 "2026-08-15T17:56:19Z")
I have a long history since 6 years back with tons of symptoms. Last night I had a hard time sleeping due a feeling stabbing in the back of my throat radiating to my ear. I’m honestly a bit to exhausted to write my hist… --- ## [Seeking advice and knowledge, is it eagels?](https://forum.livingwitheagle.org/t/seeking-advice-and-knowledge-is-it-eagels/23941)
**Author:** [@LitenDam](https://forum.livingwitheagle.org/u/LitenDam)\ **Replies:** 2\ **Last updated:** [August 14, 2026, 3:11pm UTC](https://forum.livingwitheagle.org/t/seeking-advice-and-knowledge-is-it-eagels/23941 "2026-08-14T15:11:54Z")
Now I tried to make a post earlier where I couldn’t post pictures but then later I found out I now could. I’m still very new and don’t really know how this forum work. But I’ve had symptoms for 6 years Migraines, dizz… --- ## [Fractured left ossified ligament…no pain but friction while swallowing. Surgery in January to remove the styloid process and the full stylohyoid ligament. Feeling somewhat anxious as not guaranteed it will fully address the symptoms](https://forum.livingwitheagle.org/t/fractured-left-ossified-ligament-no-pain-but-friction-while-swallowing-surgery-in-january-to-remove-the-styloid-process-and-the-full-stylohyoid-ligament-feeling-somewhat-anxious-as-not-guaranteed-it-will-fully-address-the-symptoms/23857)
**Author:** [@Xmun](https://forum.livingwitheagle.org/u/Xmun)\ **Replies:** 8\ **Last updated:** [August 10, 2026, 10:38pm UTC](https://forum.livingwitheagle.org/t/fractured-left-ossified-ligament-no-pain-but-friction-while-swallowing-surgery-in-january-to-remove-the-styloid-process-and-the-full-stylohyoid-ligament-feeling-somewhat-anxious-as-not-guaranteed-it-will-fully-address-the-symptoms/23857 "2026-08-10T22:38:27Z")
--- ## [First Post! Interested in what you think of my Xrays!](https://forum.livingwitheagle.org/t/first-post-interested-in-what-you-think-of-my-xrays/23814)
**Author:** [@petrichorrr](https://forum.livingwitheagle.org/u/petrichorrr)\ **Replies:** 11\ **Last updated:** [August 8, 2026, 1:03am UTC](https://forum.livingwitheagle.org/t/first-post-interested-in-what-you-think-of-my-xrays/23814 "2026-08-08T01:03:13Z")
Hi all! I recently was diagnosed with ES by my TMJ doctor that I saw. I will eventually share more of my story when I have more to tell other than this xray. But let me tell you…when I look at the left side of my xray…… --- ## [My Eagle Syndrome diagnosis/vent](https://forum.livingwitheagle.org/t/my-eagle-syndrome-diagnosis-vent/10330)
**Author:** [@Nomoretonsils37](https://forum.livingwitheagle.org/u/Nomoretonsils37)\ **Replies:** 32\ **Last updated:** [August 4, 2026, 12:33pm UTC](https://forum.livingwitheagle.org/t/my-eagle-syndrome-diagnosis-vent/10330 "2026-08-04T12:33:07Z")
My mind is a little blown by the diagnosis I received today. I was told by two different ENT’s that I had a “Level 2 Tonsil Stone” and after HOURS of time, stress and money spent trying to figure out a way to get it out … --- ## [Chronic Migraines, recently heard about Eagle : Asking myself questions now](https://forum.livingwitheagle.org/t/chronic-migraines-recently-heard-about-eagle-asking-myself-questions-now/23702)
**Author:** [@PaulineC](https://forum.livingwitheagle.org/u/PaulineC)\ **Replies:** 20\ **Last updated:** [August 4, 2026, 12:30pm UTC](https://forum.livingwitheagle.org/t/chronic-migraines-recently-heard-about-eagle-asking-myself-questions-now/23702 "2026-08-04T12:30:23Z")
Hi everyone, My name is Pauline, I’m 26 years old and I’m from Luxembourg. Thank you for accepting me in this group. I have been suffering from chronic migraines since I was about 19–20 years old, when I started univer… --- ## [Some symptoms returned after 2nd surgery](https://forum.livingwitheagle.org/t/some-symptoms-returned-after-2nd-surgery/23787)
**Author:** [@KarenG](https://forum.livingwitheagle.org/u/KarenG)\ **Replies:** 5\ **Last updated:** [July 31, 2026, 2:36am UTC](https://forum.livingwitheagle.org/t/some-symptoms-returned-after-2nd-surgery/23787 "2026-07-31T02:36:18Z")
My son, Ben had his second styloidectomy on May 8, when Dr. Fargen operated on the left side. Unfortunately, some of his symptoms have returned, and he is still having the episodes that have been referred to as “pseudo-s… [Next page](https://forum.livingwitheagle.org/tag/symptoms/3.md?match_all_tags=true&page=1&tags%5B%5D=symptoms)