Hi all, new to this forum! I’ve had some weird symptoms that may be related to Eagle’s although I have not been diagnosed. The reason I’m here is that I feel two finger like bony projections on both sides of my uvula that I can feel with my tongue. My tonsils were removed when I was a kid. I’ve attached 3d pictures below with a brief explanation of where they came from. This complaint started last (year see the last page for a complete list of symptoms). My symptoms and story are as follow:
Complaint lasting 4-6 hours (avg.)
Right Ear Pressure/pain (warning sign)
Right Throat Pressure/pain
Right Neck pain
Right Shoulder pain that radiates down around the shoulder blade and down the right upper chest
Nausea (sometimes; can barely eat when its at its worse; general diminished appetite)
Dizziness (when at its worse)
Trouble finding words
Right Side Headache/Pain (can also migrate to the back of the head)
Heavy breathing/Feeling that something is putting pressure on my neck
I call these “episodes” as they seem to come out of the blue and resolve themselves and cause exhaustion. They either happen out of the blue (like sitting on the couch relaxing), after exercise, and stress (more on stress later). They began happening sporadically, maybe a couple of times a week in November and December 2021. The symptoms were mild enough that I didn’t really think much of it other than I stopped eating normally. By February/March, these increased in duration to 3-4 hours and increased in frequency to 3-4 times a week. The intensity of these attacks was extreme to the point that I shouldn’t have been driving; I felt like I was driving drunk (blurry vision, pounding heart, ear/throat/neck/shoulder pain, nausea) if that makes any sense and was not sure if I would make it home in one piece. I remember being in the Chicago airport (I’ve traveled a lot so this is not flight anxiety) and feeling like I was about to pass out as I was walking to my gate to the point where I had to fix my eyes on the floor to avoid getting really dizzy. I would often be unable to eat due to nausea during these episodes and would rely on zofran. After March 2022, the frequency and severity of these episodes lessened but they picked back up in late July 2022. They have started to become very frequent (5-6 days a week) and lasting more than 8 hours on occasions and are going back to levels in February. These happen at random times during the day during the week and weekends.
When I get these, a warning sign is typically popping in ears followed by pressure in the right ear, right sided throat pressure, pounding heart beat, right sided headache, right sided neck that goes down to the collar bone, right shoulder and shoulder blade pain, chills/cold sweats (e.g I wore a t-shirt, boiled wool sweater, fleece jacket and winter jacket in these house last week which was at 70F), nausea, freezing hands, choking feeling when even when not wearing anything with a collar and even if the collar is loose, inability to concentrate, irritability. I have problems with blurry vision when they are at their worst. I also have a hard time speaking more than a few words without having to catch my breath and also have problems recalling words and will often pause for 30 seconds to try to find the right words. I will also slur my speech.
I have tried to rule out allergies and anxiety.
When this all began, my PC referred me to the following:
Brain MRI (normal)
ENT (deviated septum)
I did end up having sinus surgery to help some breathing issues that I have had in the past. I did ask the ENT about the ear pressure and throat pressure and he stated he couldn’t see anything that would cause it. I went and saw him a few weeks ago regarding the bone like protrusion in my throat and he said he couldn’t see anything. He did not try to feel for them though. He said that he would refer me to an oral surgeon but his office is making it very difficult to get a referral.
I did obtain a copy of my sinus CT scan and made a 3D model which I think shows elongated styloids after my appointment but I’m not sure if that’s the case:
Could this be Eagle’s? I was just out of the country and it was miserably cold causing my symptoms to flare up so my apologies if this is not coherent. The brain fog is in full force.