6 yrs 24/7 facial pressure, diziness, ear fullness, painful hands, etc. Does this sound like Eagle's?

Hi @borko2100,

Welcome to our forum! The symptoms you describe regarding your face i.e. pressure, slight numbness, & teeth pain can all be related to the trigeminal nerve which is one of the nerves often irritated by elongated styloids. The spinal accessory nerve is another one & though it usually affects the SCM (sternocleidomastoid muscle), & trapezoids in the shoulders, when those are tense & not functioning properly, the muscles down the arms can be affected which could cause painful hands. We’ve had other members w/ hand pain as an ES symptom.

The dizziness/floating head feeling can be the result of vascular compression, & w/ the pressure in your ears & head, I would suspect internal jugular vein compression which can cause intracranial hypertension (high blood pressure in the brain) which in turn can lead to CSF leaks. The symptoms for this can sometimes be relieved by lying down. Try elevating your head when you sleep at night to see if that reduces the head symptoms at all. The fatigue, sleepiness, anxiety, etc. can also be the result of lack of blood flow out of your brain which would be caused by constriction in the IJV(s).

It’s possible that the vigorous wood chopping incident in 2017 ignited symptoms for a problem you already had asymptomatically. It seems elongated styloids/calcified stylohyoid ligaments can lie dormant for years until the wrong activity/acccident, etc, causes a slight change in their position & then the “fun” begins. We don’t know exactly what makes the styloids elongate/stylohyoid ligaments calcify but there are some theories.

Getting a dynamic (head in various positions not just in neutral) CT scan w/ contrast of your head & neck would help show if your styloids are elongated or your s-h ligaments are calcified, & whether or not your IJVs or internal carotid arteries are being irritated or squashed by them.

Symptoms of ES do come & go & many members have noted they get worse in the afternoon, but unlike you, most attribute that to job or life stresses. Distraction can be a good symptoms reducer i.e. when you’re busy doing a job or watching a movie/reading a book or other activities, your focus changes to the task at hand & that can take the mind off the troubling symptoms temporarily, but they will be back once life quiets down again.

This post written by @Jules will be helpful:

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