I am glad I have found this site. I am from Toronto, Canada and I have been suffering from this terrible Jugular Eagle variant since 2016. I just did not know it at the time. It has completely put my life to stop as I have a multitude of symptoms. I was finally diagnosed after several doctors dismissed me. As result, I had all the imaging you can think of; MRIs, MRVs, CT scans, Ultrasound, and finally Catheter Angiogram/Venogram.
I had to request an ultrasound for my neck after a second opinion on one of my MRI showed that I had signs of intercranial pressure but they did not know what was causing it. The ultrasound showed high velocity for both Jugular Veins ( 130 cm/s for the left one and 200 cm/s for the right) but it was missed by the radiologist and I had to point them out after learning how to read doppler ultrasound for vascular issues (narrowing = high velocity, reminds me of the fluid dynamics I took in physics classes). After confronting them with the high velocity, only then they agreed to take second look and agreed with me. Then a CT Scan of the neck, head and chest was ordered to investigate extrinsic compression of IJVs. The CT Scan did show that my right IJV was hypoplastic (naturally narrowed) and showed my left Dominant IJV was compressed by both Styloid and C1 transverse process but again the radiologist missed it so it was reported as unremarkable. I had to point it to them after learning how to read CT Scans for jugulars from YouTube videos. I also learned how to render 3Ds in 3D slicer same as many of you here (necessity is the mother of learning). So finally, I contacted a vascular surgeon who agreed to do dynamic Catheter Angiogram/Venogram with manometry and lo and behold he could see that 90% of my brain was drained by my left Jugular Vein which was severely compressed by primarily the styloid process and then C1 arch. I have attached the images below. So now, they do not know what to do. Vascular surgeon thought he could stent it and I told him that will cause complication since there is osseous compression and that I need removal of the left styloid and shaving of the C1 but here in Canada, no doctor seems to know or do that so I might as well pay out of the pocket in the states to get it done.
Also my Styloids are not long (the left one is about ~ 1.8 cm but thick) and I have one dominant left jugular vein which is compressed by the left Styloid process and to some degree the C1. My right jugular vein is small and hardly draining my brain so nothing can be done on it.
I have severe bilateral hearing loss, Vision problems (halos around lights, blurry, distortion of surfaces), Memory & Cognitive issues, Insomnia…etc. I can’t concentrate at all. I will give the full details of my symptoms shortly but I have not yet seen anyone here complaining about hearing loss and memory impairment. Does anyone suffer from SNHL as result of this Jugular compression. I have seen the some academic papers on IJVS showing that almost 50% of IJVs patients suffer from hearing loss.
Axial 2021 CT Scan of the neck showing styloid & C1 compression in the left dominant IJV
Sagittal 2021 CT Scan of the neck showing styloid & C1 compression in the left dominant IJV
2020 MR Angiogram Images with segmented Venous phase shows the imprint of the styloid compression on the dominant left Internal Jugular Vein.
3D Bone remodelling of the 2021 CT scan of the Neck and Head showing left dominant left jugular vain compression by Styloid process and C1 transverse process
2021 Catheter Angiogram Showing narrowed dominant left Jugular vein with blood flow issues