Besides Dr. Nakaji, Dr. Lawton in Phoenix has a video on YouTube showing how he cut a channel in the top of C-1 to make more room for the patient’s IJV to decompress it. We have found that he is extremely picky about which cases he takes, & he’s turned away several of our member who would have seriously benefitted from his help.
•Dr. Michael T. Lawton, Barrow Neurological Institute, 2910 North 3rd Avenue, Phoenix, AZ,
(602) 406-3181 https://www.barrowneuro.org/person/michael-lawton-md/
Dr. Hepworth is the person I’ve read who slightly move the IJV in one case & tacked it down to some surrounding tissues to help keep it away from C-1. I can’t remember who posted that though.
•Dr. Edward Hepworth, IMMUNOe, 3150 E 3rd Ave, Denver, CO 80206 (303) 224-4711 http://www.immunoe.com
@JPB - I totally agree w/ @vdm. Sounds like you may be allergic to the dissolving sutures. I’m so sorry your recovery has been such a challenge so far!!
I think I mentioned that I learned staying very hydrated helped reduce my FBS symptoms significantly. I think drinking 60-80 oz of water & herb tea/day was the key for me. Maybe try drinking 8-12 oz of water 15 min before eating to see if that’s at all helpful. It helps keep the saliva more dilute which is what I think reduced the intensity of my symptoms.