@JPB it really feels you got some reaction to the sutures?
Upd: Vicryl (used for platysma muscle closure) is usually absorbed in max 70 days, Monocryl (for skin) in up to 120 days.
FBS to me feels like having some hot drink after eating ice cream, just doesn’t last that long.
Besides Dr. Nakaji, Dr. Lawton in Phoenix has a video on YouTube showing how he cut a channel in the top of C-1 to make more room for the patient’s IJV to decompress it. We have found that he is extremely picky about which cases he takes, & he’s turned away several of our member who would have seriously benefitted from his help.
•Dr. Michael T. Lawton, Barrow Neurological Institute, 2910 North 3rd Avenue, Phoenix, AZ,
(602) 406-3181 https://www.barrowneuro.org/person/michael-lawton-md/
Dr. Hepworth is the person I’ve read who slightly move the IJV in one case & tacked it down to some surrounding tissues to help keep it away from C-1. I can’t remember who posted that though.
•Dr. Edward Hepworth, IMMUNOe, 3150 E 3rd Ave, Denver, CO 80206 (303) 224-4711 http://www.immunoe.com
@JPB - I totally agree w/ @vdm. Sounds like you may be allergic to the dissolving sutures. I’m so sorry your recovery has been such a challenge so far!!
I think I mentioned that I learned staying very hydrated helped reduce my FBS symptoms significantly. I think drinking 60-80 oz of water & herb tea/day was the key for me. Maybe try drinking 8-12 oz of water 15 min before eating to see if that’s at all helpful. It helps keep the saliva more dilute which is what I think reduced the intensity of my symptoms.
Hi @JPB, I hope you are keeping well and past the worst of Eagles. I’m having a similar reaction on the skin to you, but which started about 2.5months post op in a very small amount but continues to increase. It’s now about 2cm radius around the incision. I just wonder how yours was treated? I also continue to have pain around the surgery site - back of ear and below the angle of the mandible. I’m going to my PCP today but hoped you might be able to also give some insight. Thank you
I am happy to help you in any way possible. PM me & I’ll give you my email if you need to message me directly
Thankfully, my skin has improved dramatically and is no longer a concern. I tried various things, but I think it was time and Mupirocin (Bactroban) or one of the alternative antibiotic topicals that helped the most. The pain can last for awhile - sometimes for a few years before it stops causing concerns to even the slightest touch.
I have tried a multitude of medications too and am on a trial for 2 additional ones currently.
Hoping things improve soon!!!
Good to hear from you @JPB! I’m glad your skin is doing better & it sounds like you’re doing better overall, at least that"s what I hope I’m reading into your post.
I hope your ES symptoms have also diminished over time & you’re back to a more normal life.
Hi, thank you so much for popping on to let me know your experience. I’m currently on an oral antibiotic which has reduced some of the inflammation and the bumps have reduced in size but with just two days to go of the course I suspect it won’t clear it. I’m wondering if my incision has become infected from being exposed to bacteria each time I go to the Physio - I’ve never used gym type equipment in the past but imagine they are a haven for spreading things between users. I’m trying to cover the incision with a Band-Aid when attending now but don’t know if that’s enough to protect it. It’s strange because my incision looked good at 2.5 months just before this happened, and I wouldn’t have guessed that it could get infected.
I might ask my PCP for a topical too. Thank you
How is your incison looking now? Have they healed? Did you end up getting checked over by the hyoid syndrome specialist?
I’m sorry to hear it’s been a tough recovery. Since my inflammation has reduced a bit, I’m finding some good neck pain relief by doing simple massage to my neck, especially the trap and base of skull. I was watching a YouTube video by Dr Centeno about cci which gave some at home symptoms relief techniques. I don’t know if I have it but the sub occipital muscle massage suggestion has provided a lot of pain relief. It obviously doesn’t help the nerves but does help to get my head into a better position which then I feel helps the nerves a tiny tiny bit.
You’re being really proactive with your recovery @BraveKat , I hope that it pays off & things improve 
Thank you!!
I am receiving injections every 3 months (due for another one next week) and they recently decided to try me on carbamazepine - has anyone had success with this?
JPB
Thank you!
Incisions are completely healed - all is good!!!
hyoid - yes, still under someone’s care for this!
Dr Centeno - I haven’t heard from him but will check it out.
Thank you!
Hopefully someone else will chip in about carbamazepine, it’s not one of the most common nerve pain meds that we hear about on here…My aunt had very painful TN & carbamazepine was the only medication to help with that, she ended up on a very high dose which made her sleepy and a bit off-balance, hopefully you won’t need such a high dose.
Thank you!!!