Just a thought…I do not know if or when my surgery will be, however it would be best for me to loose some weight and get into some kind of shape prior. I use to be about 5’9" 170 pounds since my ES journey started I have ballooned to 215 pounds. I’m guessing any type of activity that raises your heart rate and pumps blood faster into your head would not be good. Thought being in my case the blood is not leaving my head fast enough and I have been diagnosed with Intercranial venous hypertension.

I have had similar issues.
I went from about 150 to 200 pounds in about 6 months.
This is not medical advice, talk to your doctor- but I’ve been told slow, methodical walking is good.

I’m not too worried about my weight (in theory) because I’m normally very, very active. My pre-surgery tests have been done and I’m not perfect but I’m OK for surgery.

I’m focusing on keeping my blood pressure down and looking forward to resuming hiking, climbing, biking - etc. after surgery. Hang in there.


As @tokenegret suggested, walking is safe. Start w/ shorter distance/time & gradually work up to a couple of miles/day. I was on a Paleo diet prior to my ES surgeries which helped me feel really good & also helped me lose weight. Love those veggies!! Even just cutting processed foods/fast food out of your diet for a few months can help a lot.

1 Like

Yes, strenuous exercise is not a good idea! I had bilateral jugular compression which caused IH so couldn’t do any exercise other than walking or some steady swimming.


Seems to be a common issue. I too gained added pounds. Mostly due to nerve irritation in my throat and the only thing that provided relief was food/beverage so I constantly ate, and any aerobic activity flared my symptoms. I’m anxious to get back into a healthy routine…it’s coming soon!

As noted, you can’t go wrong with walking. Even interval walking (normal pace for a few mins and faster paced for a few mins) would benefit. I believe it’s good for both mind and body. Lots of water too!


My experience is different than most. The only time I can relieve the pressure in my head is if I do exercise. The hard part is pushing myself to do it. I run 3-4 miles most days just for relief. My doctor did say that most people that can force the blood through their head don’t get much relief from blood thinners. My weight has gone up and down mostly due to digestive issues. I’ll have a few months where I drop a bunch of weight for no reason and have problems digesting food. Dr. Hepworth said it’s Mast Cell Activation but I don’t know much about that.


You’re not alone, I was able to manage headaches and occasional tiredness for very long time with regular exercise. Not sure if that was simply too much when symptoms hit me with vengeance in early 2020, or I ruined my neck tissue and the vein(s) with active lifestyle by then.

1 Like

If Dr. Hepworth has mentioned (Mast Cell Activation) MCA, it might be worth getting checked out for that. It is a disease that can be progressive. You could start w/ a gastroenterologist.

I’ve been trying to get more information from him but haven’t had much luck.

I’m sorry about that. I’m surprised he’d mention it then just drop the ball rather than giving you suggestions about what type of doctor to see to check it out.

I had my procedure from Dr. P on 5/25 and I am still waiting for him to consult with his colleagues and get back to me. I sent several emails and made phone calls. Everyone must be on vacation.

You’re not the only one.

@Bc2 & @stuuke - It’s soooo frustrating :rage: & a bit demeaning when you want/need answers & the person who can provide those is too busy or unavailable to give them to you in a timely fashion. I hope for both of you to receive the long awaited phone call, email, text or whatever communication your doctors use, ASAP so you know how to proceed.

1 Like