Anyone Else Navigated All This? Headaches & Orthodontia & ES, Oh My!

@Kmarty14 - Some years ago we had someone suggest that she thought her styloid elongation might have been the result of having braces on her teeth that changed the alignment of her bite & thus the position of her jaws. This makes some sense. Since you’ve just gotten braces, & already have ES, that doesn’t sound like your situation, however, your overjet/overbite & bruxism (I have that problem in spades!) could have been involved with the development of elongated styloids/calcified stylohyoid ligaments. I would more highly suspect your undiagnosed hypermobility being at the base of it though. We have many members w/ TMJD including myself. My ES surgeries actually calmed the pain in my jaw joints but for others it’s sometimes made it worse.

Here are 2 other posts that mention orthognathic surgery:

Headaches can be a primary ES symptom when IJV or ICA compression are involved. It sounds from what you’ve noted on your imaging (In pulling up the imaging myself, the left SH and head of C1 have a vein pretty snuggly perched between them.) that your IJV is compressed between your styloid (SP for styloid process :wink:) & the transverse process (TP) of C1. IJV compressions decrease the rate that deoxygenated blood can flow out of your brain while freshly oxygenated blood flows into your brain via the ICA (internal carotid artery) at the normal rate. The higher inflow of blood than outflow causes intracranial hypertension which in turn causes many of the symptoms you’ve mentioned: headaches/migraines, neck pain - especially occipital/back of the head at skull base, POTS and vasovagal sycope (your family members who have these may also have IJV compression even w/o an ES diagnosis), heat sensitivity, & oxygen deprivation during activity; & brain fog/fatigue. Visual changes & tinnitus/pulsatile tinnitus. We have links to many research papers in our Research Paper section regarding IJV compression & its related symptoms. Research Papers - Living with Eagle

Anxiety, depression & gastrointestinal issues can be the result of vagus nerve compression because the vagus nerve sits right behind the IJV between the styloid & C1 so when the IJV is squashed, the vagus nerve also gets squashed which causes the symptoms I just listed along with others like feeling oxygen deprived when you’re not, vocal changes, blood pressure & heart palpitations/irregular heartbeat (thus the relationship of POTS to IJV compression) among other things.

Have you seen the Bendy Bodies Podcast? There’s tons of information regarding hypermobility there which could be helpful for you - https://www.bendybodiespodcast.com

You’ll need to find a doctor who is familiar w/ vascular ES or “vascular outflow obstruction”. You most likely won’t find someone local to you. There is tons of information on our forum about that problem & we have many members who have dealt with it or are currently doing so.
Doctors on our Doctors List who we know have a lot of experience w/ IJV compression related to ES are listed below. You’d do best by get a consult with one of them:

Dr. Hepworth - Denver Sinus Care, 3150 E 3rd Ave, Denver, CO 80206 (720) 899-9489, FAX (720) 953-5151, email: info@denversinuscare.com or for initial consults - kcurry@denversinuscare.com

Dr. Nakaji - •Dr. Peter Nakaji, https://www.scottsdaleclinic.co 602-313-7772

Dr. Cognetti - •Dr David Cognetti, Thomas Jefferson University Hospital, Philadelphia 215- 955- 6760 Works with Dr Heller now to do C1 shaves

Dr. Liu - 200 S. Orange Ave, Ste. 265, Livingston, NJ Dr. James K. Liu | Top Neurosurgeon in Livingston, NJ

Dr. Costantino - •Dr Peter Costantino, 4 Westchester Park Dr, 4th floor, White Plains, (914) 517-8056
http://www.nyhni.org/find-a-physician/Peter-D-Costantino-MD,FACS - Works w/ Dr. Tobias to do C1 shaves

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