New User Help

Topic	Replies	Views	Activity
FAQ - Frequently Asked Questions How to use the forum How is this forum organised? The forum is a list of “discussions” (or “topics”, “conversations”, “threads”). Any registered member can create a new discussion. Each of them has a “topic line”/“subje…	0	706	August 22, 2023
About the New User Help category	4	1543	October 20, 2020
New here hoping for a diagnosis soon stories	6	43	November 6, 2026
Just Got Diagnosed with ES - Years of unexplained symptoms - Finally a lead stories	6	107	October 28, 2026
CSF leak after C1 revision	26	357	October 22, 2026
Whole Head & Face Numbness stories , internal-jugular-vei	2	70	October 19, 2026
Image evaluation internal-jugular-vei	13	187	October 10, 2026
Learning about options stories , treatment , symptoms	53	795	September 13, 2026
New here and working toward diagnosis symptoms , internal-jugular-vei	31	414	September 7, 2026
Newbie here. Kind of diagnosed	3	107	September 5, 2026
Can Eagle Syndrome Cause Strongly Jaw Modulated Tinnitus? My Story treatment , symptoms , internal-jugular-vei	11	174	August 25, 2026
Chronic Migraines, recently heard about Eagle : Asking myself questions now stories , symptoms	20	294	August 4, 2026
What Type of Specialist Should I see? treatment	27	273	July 25, 2026
Realistic recovery timeline from those who hav had surgery	2	154	July 2, 2026
Images from CBCT scan	7	127	June 27, 2026
Next steps after first discovering calcified ligament	5	134	June 20, 2026
Balloon Occlusion Test Venogram for Jugular	2	102	June 11, 2026
Dental Pano images almost ten years apart, is it ES?	54	755	June 9, 2026
Dr Osborne- Blue Cross Blue Shield Out of Network Waiver-2025	99	2112	June 3, 2026
New user, desperate for help with diagnosis	99	1247	May 7, 2026
Post op 6 months	3	188	March 31, 2026
Not sure which route to take?	11	155	March 25, 2026
Help with Bupa	0	39	March 25, 2026
Insurance advice needed for syloidectomy w/Dr.Osborne treatment	1	73	March 24, 2026
Help with possible diagnosis in the UK	5	69	March 23, 2026
To C1 or not C1? treatment	3	201	March 21, 2026
Looking for Advice Again	22	278	March 21, 2026
Hyoid Bone Pain	12	211	March 19, 2026
FINALLY! Answers in Denver treatment	22	897	March 1, 2026
New story, seeing Dr. Merati in Seattle, needing some advice	23	424	February 24, 2026

FAQ - Frequently Asked Questions

How to use the forum

How is this forum organised?

The forum is a list of “discussions” (or “topics”, “conversations”, “threads”). Any registered member can create a new discussion. Each of them has a “topic line”/“subje…