Hello everyone!
I just wanted to update everyone that I’m meeting with an ES doctor in a month, Dr. Campbell. He’s out of Indiana, Avon actually. He is one of the doctors on the list that doesn’t do surgery, I’m meeting with him just to get a game plan on what to do moving forward
I’m nervous to meet with him, thankfully my husband is going with me!
What questions should I be asking him? Anything in particular that I need to talk to him about?
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We have a list of questions that we suggest members ask but these are more aimed at deciding whether the doctor is experienced with surgery, so not really relevant… I would ask him to go through your CT, to look at the angle, length and thickness of the styloids, and ask if the stylo-hyoid ligaments are calcified as well. If you have any vascular symptoms (dizziness, fainting, brain fog, head pressure, pulsatile tinnitus for example) you could ask for a CT with contrast, but if you don’t have those symptoms then probably not worth getting another scan…
If you have nerve pain with your ES symptoms then he could perhaps prescribe one of the nerve pain meds to help you. Some members have had steroid/ lidocaine injections into the tonsil region, it can help with pain until you’re able to get surgery, so you could ask if he does this if your symptoms are very bad? They don’t always work though.
If he knows of anyone in your state who does the surgery, that would be helpful, but otherwise ask to be referred to another doctor on our list?
Thank you so much!! I appreciate your help!