I’m new, I haven’t been diagnosed with ES but my ENT surgeon told me about ES and showed me pictures on his computer of the styloid.
Having read lot’s on here and the lack of knowledge - in the medical community - about the condition. I am very pleased that my ENT discussed it with me and without that I don’t think I would be in the position I am now.
The position being that I think I have ES, whether that be may be a fractured styloid, or developing ES. I don’t have any pain, just the protrusion which - although my surgeon spoke of ES - he convinced himself during our consultation that it “could NOT be that” as I “haven’t had it since birth”. So although he knows about ES - he doesn’t know how it comes about - i.e. that the styloid can grow/become calcified/ elongated or can fracture - all of which can lead to my symptom of a hard mass protruding from my tonsil area.
He said he thinks it’s a tonsillith. I was confused by this conclusion during our consultation as I have had the odd tonsil stone which has always been accompanied by bad breath/taste in my mouth and has made it’s way out over time. Also, this mass isn’t inside the tonsil itself but a bit lower down and feels like bone.
On reflection - I think during our consultation his subconscious told him it’s the styloid he’s palpating (this gave me pain radiating into my ear area, head and neck). It was then that he showed me the pictures of the styloid on his computer. But he went on to convince himself and me that it must be a tonsillith and not ES, as ES he said “is a congenital condition”. So he’s knowledge didn’t connect to his instincts and he went with his knowledge without gaining further knowledge through a scan or further options.
So I left, feeling bamboozled, having signed the consent form for a tonsillectomy which he said would be in a few weeks. Luckily the few weeks prediction to tonsillectomy turned out to be 8 weeks and I have since experienced a cracking sound in my head/mouth on waking up over the weekend and thought my teeth/tooth had broken but on checking nothing was amiss and this reminded me of having a similar experience around the time of finding the mass in the tonsil area and got me thinking about the picture of the styloid bone he’d shown me and I found your site and everything started to make sense.
But the lack of other symptoms makes me doubt somewhat that it is ES. I keep thinking about the cracking sound and that I sleep on the side of the mass and think that maybe I am tensing and have caused myself a fractured styloid in my sleep.
Do you think this sounds likely? Do I need to worry about the cracking?
I have emailed my ENT surgeon, to tell him that I have experienced this cracking sound and have done some thinking/research and think there is a strong possibility that it could be the styloid and have asked for a CT scan prior to the tonsillectomy - to rule it out. I sent the email on monday and have been told by his secretary that he’s away until next week so I am anxiously waiting to hear back from him.
I want to be ready to offer him a clear rationale to why I think it is ES and would welcome any advice from you?
I have ready all the newbie posts and am going to put together some paragraphs from the journal articles together - so I have literature to backup my rational - I feel I might be going over the top but I think it will help me with holding my position/power - even if I don’t need to use it.
I would welcome any feedback as I want to be really clear - and although I know I am articulate - underneath I have immense anxiety - which tends to get in the way of me being able to communicate myself - especially over the phone which it is likely to be - if he rings to discuss my email next week.
Thanks for reading.
Thanks for this site and all contributors for the calmness and clarity it has brought me.