Hi there. My appointment was brought forward and I had my consultation with A/Prof E on May 7th.
He advised my CTV and MRI confirmed I’m co dominant, have severe (level 3) bilateral IJV Compression and a partially empty sella.
He discussed styloidectomy, IJV decompression, C1 shave, +/- digastric muscle and SAN involvement.
Definitely a candidate for surgery and a date to be advised, most likely 4-6 weeks as I will proceed as a private patient.
It can’t come soon enough as im severely unwell, hanging on by my toenails.
My case was actually presented to the Stylojugular syndrome MDT today.
His rooms called me this afternoon to advise Prof E is calling me early next week
Things are now progressing