Hi… I forgot to ask in an earlier message, is there anyone with ES that has extreme base of skull pain when they are laying down and try to turn over? This is one of the most excruciating symptoms that I have. Just trying to connect these dots… Thanks again.
Hi @Goose! Welcome to our forum! I had extreme base of skull pain all the time prior to my surgeries but I don’t think it was as bad as yours sounds. It is a common symptom of ES.
I experience pain at the base of my skull as well. I read where one member described it like a nail sticking into their skull. Mine is very “nail-like.” Yours sounds more painful though. Mine was more aggravating. I found if I had my pillows a certain way, it wasn’t too painful, just more bothersome.