Canadian member Questions

Hi hemidemt,

Yes, he will remove part of the styloid, not the whole thing, but it will be more like 2 inches that he removes, not 2 cm. I asked him if he would do the external approach and remove the whole thing, but he said he is not comfortable with that. He told me that there are a lot of nerves there and could easily get damaged. I have read posts that you made previously about having the doctor remove the whole styloid, but unfortunately, I don't have that option at this point. I have made my mind up that I am going to remain hopeful that this procedure will help me, and if it doesn't, then I will look into other options.

Like I said in my post, I haven't looked into the Mayo Clinic option yet, so I don't know if it is a good place to be treated or not. Just trying to share some info that I have heard about. It's worth looking into, I would think.

Thanks for your advice!

heidemt said:

Hi Farm Girl,

I saw that your styloid was about 5 cm and Dr. Witterick said he would remove about 2 cm. And he also mentioned that some people get relief from the surgery and some don't. I wanted to tell you that if he is only getting the styloid down to 3 cm or so, that will be enough to cure some people, but not all. Some people have issues and pain with a shorter styloid. So I don't know if you could mention that to him or if he would be receptive or not.

One of the most experienced surgeons with Eagles is Dr. Samji in California and I saw that Isaiah mentioned the other day that he has revised his criteria for Eagles to be 2.5 cm or greater. So he's seen a number of patients who were symptomatic with shorter styloids. And I had pain from a piece of styloid that was about 2 cm.

Also, I mentioned recently that the Mayo Clinic in the US has not been a good place for Eagles patients to go. They've been told they don't treat Eagles there. I have no idea if it's also true for Mayo in Canada, but it would be worth a phone call or email to check before anyone goes there.

That is great news!! I will keep you in my prayers!

Hopefully the medication will help with your pain!

Kelx said:

I don't think we have a mayo in canada. But good new he believes me!!!! He said he only has seen one patient in his 40 year career as an ENT for eagles. And he has never performed one either. He retires in 6 weeks. So he going to refer me too Ian!! I hope he accepts me!!!!!! Pls pray!!!!! I got some diladud hopefully that eases the pain.

Thanks! How long is your Styloid? Mine that is bugging me is 4.1 cm. I can even feel it under my chin, can you feel the boney part too? Tried half the diladud but never worked… Which is weird you think that stuff would work…Maybe I’ll try the full dose tomorrow. How many appointments did u have with him before surgury? I hope I don’t have many as it will be a lot of air plane rides…and what test did he order if any?