Hello to all,
I had a call back today from a neurosurgeon clinic in New Jersey, USA. This gave me so much hope. I have VES but no Canadian specialists seem to know about it. This support group is doing a great job, I am so amazed by the analysis performed by the participants 
I’m really glad you got a call back from the neurosurgeon’s office in NJ today, @Hamela. When you meet w/ him, please let us know if he can help you & how knowledgeable he is about vES.
Thank you, & hope that you get some help from them 
I will let you know for sure.
The name of the clinic is simply called “the Neurosurgeon of New Jersey”.
Take care!!
Thank you for the support 