I’m so sorry that you’re suffering so badly…hopefully you’ll get the report from Dr Heim soon, and then you’ll be able to take that to your GP/PCP and ask again for a referral. We do suggest also that members print off ES research papers which support your symptoms (there’s some links in the Newbies Guide Section & a whole section of research papers), and take those to your doctor to push for a referral. I don’t know the Swedish medical system, is there any way if you don’t get anywhere with Dr Heim’s report to appeal or complain?
Have you tried all the doctors on the list in the Doctor Info Section? Here’s a link in case you’ve not had a look:
Doctor Lists – no discussion - Symptoms and Treatments / Doctor Information - Living with Eagle
We do have a section about advocating for yourself on the site too, there might be some useful info in there for you? here’s a link:
Latest Patient Self Advocacy topics - Living with Eagle
I hope that you can get some help soon, sending you a hug 
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