Dr. Nakaji Surgery - Post Op

Hey all,

So I am officially 4 days post-op and wanted to share my experience with the surgery and first couple days of healing.

I had my surgery conducted by doctor Dr. Nakaji and he was great. They were able to get the whole thing out, which clocked in around 5 cm…which was longer than it looked like on the scans. He was unable to shave my C1 because my spinal accessory nerve was getting too irritated and it was providing the least amount of compression, so he just called it. He did clean up the area and cut away any soft tissue that started calcifying and expanded the carotid sheath to allow expansion. He did note, my carotid sheath and surrounding tissue was already inflamed and very rough, so my recovery period might be more intense than what is considered normal.

The first day, I didn’t notice much of a difference but it was mostly numb and I could barely speak. I had some minor facial weakness, but you can’t really tell. I did immediately notice the foreign object sensation was gone and it was no longer poking me in the back of the throat. Small wins!

The second day was pretty much the same. My neck felt a little lighter but too many medications were in my system to get a good read.

Third day was the worst. Swelling and pain kicked in and I couldn’t swallow very well. Most of the day consisted of choking on my spit and icing the area. I started noticing very small amounts of shoulder weakness, likely from Dr. Nakaji trying to move the nerve out of the way.

Today is the fourth day and the swelling went down significantly. I still have some issues talking and sinus/throat swelling makes it hard to swallow, but I think it is getting better. I can feel the shoulder and trap weakness a little more and I will probably have to PT it to get back my full strength. It is not a big deal though, it doesn’t prevent me from doing anything I could have done before.

Dr. Nakaji had said any bloodflow or dysautonomia symptoms would likely take between 2-6 months to notice any real change, as the area needs time to heal, scar and settle. Right now, my neck is too swollen to notice anything beyond the absence of a foreign object. But, that in itself was encouraging. The initial relief was small but it was immediate.

I follow up with him in a week and a half to discuss recovery. After the surgery, he had said I may need the other side decompressed but wants to see how this does. My veins were smaller than he expected and the inflammation in the tissue suggests either the Eagle Syndrome was really affecting the area or there is another vascular component at play.

If anyone has any questions, please feel free to ask.

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Thank you for your thorough update so soon after surgery @avarj. It does sound like your surgery went well. I’m glad Dr. Nakaji didn’t push your accessory nerve beyond what he felt was reasonable. Shoulder pain/weakness plus neck/throat recovery post op isn’t a fun combination. I hope you notice more & more improvement as the weeks pass. I’m glad Dr. Nakaji gave you a realistic recovery time frame as that will help you be patient as you heal.

There are some simple, easy exercises you can begin doing at 3-4 weeks post op to help with your accessory nerve if you still have shoulder weakness/pain. They’re called “nerve flossing”. I sent these links to @LisaMaria & she said they really helped & pretty quickly. The videos are essentially the same but I think the second one shows how to do them a bit more clearly:

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Geez Im wondering if this is why I am having fits in that same place in the neck/traps/shoulder!:astonished_face: I feel likes its been TOS or rotator cuff!

Anyways avarj, sounds like you are doing great and thanks for sharing. Does Dr. N give you prednisone to take after surgery? It sure helped me with inflammation and swelling.

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Hoping for a good recovery and relief of ALL of your symptoms!!

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Thank you :slight_smile:

He has me taking Ibuprofen and Tylenol for pain and inflammation. I was on Oxy for the first two nights, but he wanted me to taper off it.

Honestly, pain has been much less of an issue than the weakness and inflammation. I have been communicating with him and we are making sure there is enough inflammation to promote healing but not too much.

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I’m pleased that you’re through surgery, and that you’ve noticed one symptom improved already! That’s good considering the swelling and that Dr Nakaji thought your recovery might be harder… I hope that you heal well and that you do see more improvements, take care :folded_hands:

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