Just be aware that you are exposing yourself to radiation with each CT scan so you want to make sure you get what you need but don’t get what you don’t need.
If all they are doing is measuring it, the doctor can go back to radiologist and ask for measurement. The left one is scary and should be “officially” measured.
You really need to know what cranial nerves are being affected by them. This is where the MRI may come in handy such as including the Fiesta, Fiesta-C or 3d Ciss scan.
You may need some other types of radiation imaging going forward.
I will say this. If that was my styloid on the left I would be cautious about what I do with my neck while I was sorting it out. So as an example, although we have to live our life moving our neck I am not swiveling mine as far as it can go while I am sorting my issue out. I told my physical therapist that just because my neck can move doesn’t mean I should be exacerbating the issues.
I see and the only way to know if to see a specialist? By scary you mean that’s how long it looks? Idk anymore lol I guess the only thing to do is consult to dr. Nakaji. I feel hopeless at times it sucks and I’m literally such a positive person. I forgot what normal feels like.
Yeah I think the best option rn is to consult with dr. Nakaji and see. I did call this morning I need to fax them the info but never did that before so I’ll figure out how to do it. Maybe he got all the answers I’m looking for. You guys are amazing for helping as well
Yes it is scarily long. I just glanced up and saw
One reference to 13 mm on the report. You are going to have to jump through hoops to get to an expert insurance wise but you could always try telehealth with Constantino if he is still doing it out of state just to get an expert opinion. He is reasonable but set the fee ahead of time so no surprises. Nakaji doesnt do video visits
I think you should show that left styloid to your dad and try to get him to understand just how abnormal it is. Maybe that picture will get him to understand.
You have a long road ahead but stay optimistic. You found a big part of the problem.
Liquid B12 and NAC helped me a little with some of the brain issues. Low dose gabapentin helps me a little with the feeling strangled issue. I put a blanket under my chin when sleeping to try to keep it up.
Thank you I do delivery for work to keep busy and it’s good cuz I’m on my own boss (work whenever I’m somewhat okay) not much money but it’s hard sometimes. And yeah definitely will do so you think my left styloid is the biggest part of issue?
Yes, among the symptoms IJV compression causes is the “out of reality lightheaded feeling” along w/ headaches, visual changes, dizziness, pulsatile tinnitus (hearing heartbeat in your ear) etc. Not everyone gets all those symptoms though.
I’m not sure what @JugularEagle was referring to regarding 13mm. Styloids don’t grow that long. The longest we’ve seen here is 8mm. I’d guess your left one might be 6-7 mm at the longest, but that’s just a guess.
I think pursuing Dr. Nakaji, if you can afford to travel to AZ a couple of times would be worthwhile, but a consult with Dr. Costantino would be good, too.
I have some concern about the way your C1 vertebra looks in the last group of images you posted The left & right halves look disconnected from each other. That could just be a function of the way your computer translated the image, but it would be worthwhile checking on that.
Wow yeah I definitely do get all those symptoms especially on my left side. So removing the styloids should help you think? and yeah I’m not sure with c1. I know there is excercises that help align the atlas’s which is the c1 right?
Wow yeah. The worst is the out of reality feelings ligheaded. Hard to describe to anybody, I have my alright days with it but some days are brutal. I did have bad anxiety couple years ago that got way better years later until obviously this year. But it definitely feels different then “out of reality anxiety I had years ago”. this feels more like a mind block if that makes sense and more cognitive.
I remeber symptoms started sometime last year in June when I had 6 month stiff neck but went away. I noticed my cognitive function was getting worse and worse so did they those feelings too…
I see that makes sense. How safe is the procedure usually to remove your styloids and the decompression? But obviously the doctor does have to rule out any compression first
If you scroll way up there is a note in his report about calcification and it measures 13 mm. It cuts off on my phone so i could not read the whole note.
Read the wording and see what you think. Seems to me this is about ligament calcification. My neurovascular surgeon called mine ligament but my report doesnt call it that. I think sometimes it gets lumped together under styloid.
If you have very little income it might be possible to get on medicaid. Also there is open enrollment for obamacare right now. But if you qualify for state medicaid you cant get obamacare. Obamacare does have subsidies to help with premiums. Health insurance is a complicated issue. You might be able to get a plan with no deductible for very little money due to subsidies. It is worth checking out.
You still will have a problem getting out of state approval but it can be done. Wisconsin driving distance to Dr lamarre in Ohio might be doable for you. He does not do video visit for first visit.
It says there’s a section of calcified stylo-hyoid ligament which is approx 13mm long, not the whole styloid & ligament calcification, phew, that would be a really bad reading by a radiologist! It mentions the styloids reach down to C3 level, so that is really long @Khalil5oo! Usually we see down to C1, occasionally to C2, rarely C3…
There are risks with any surgery, and this is in an area with lots of blood vessels and nerves, but with an experienced surgeon who does this sort of surgery on the neck area regularly, it’s not as risky. They monitor nerves usually so that alerts them to any stress on the nerve.
