You should be able to get a copy of the scan from that place who did it if done in the United States. I always get mine at the time of the procedure if possible. I usually have to wait about 15 minutes. Of course, it might be different at the facility that did yours.
Once you get the CD you can do a 3d version with software. It might help your family understand what is happening to you.
@Khalil5oo - I had an ultrasound done w/ my head turned left & right, & looking up & down & the interventional radiologist who did the US told me I didnât have any compression. I had visual evidence from my CTA & MRV, but it wasnât until I saw Sarah Reynolds, Dr. Hepworthâs NP & was sent for an US using his protocol that it became obvious I do have IJV compression. Thatâs to say the radiologists reading the scan results donât always think what they see is significant so they report it as âall is wellâ .
Thatâs crazy how it works. What were you guys symptoms did you feel brain fog, lightheadness etc⌠itâs really hard to ignore. drinking helps kinda make me relax I donât drink much but when I do it helps if that makes sense. I donât condone it at all but at this point Iâm lost and need relief when possibleâŚ
Yeah is the same with e delivery?
Brain fog is a very common symptom for IJV compression.
I had a constant off-balance feeling, felt like I was a bit drunk all the time tbh, & had head pressureâŚI went off drink, I felt as if I wasnât in complete control enough as it was! I had brain fog, tiredness, ear pressure, dizzinessâŚI had bilateral IJV compression.
I donât know if it is the same with e-delivery. It is many images. For example, one series on my scan has 499 images. There are several series done on my DVD but mine was head and neck CTA. I had also asked for a 3d rendering. My facility had to send it out. The orbital CT scan had less.
Hey guys I got the picture into 3d!
Hey guys I got my 3d scan finally not sure on how to post it but I took pictures
Lmk what you guys think
@Khalil5oo - Youâve mostly given images of your right styloid though your left one is close to equally as long & can be seen in the 4th & 5th images you posted. I annotated one image by drawing aqua lines parallel to the styloids. Significantly, they both extend below your lower jaw bone (mandible) which makes them quite long. I canât see the top of the left one but the right one looks like the styloid itself may be of normal length, however, your stylohyoid ligament has calcified almost all the way to the lesser horn of the hyoid. This is also true on the left.
The fact you have some symptoms of vascular compression is concerning though your IJVs & ICAs arenât visible in the images you posted so itâs hard to know for sure if you have vascular compression.
Did you have your follow-up appointment since the CT scan? If so, what did your doctor say?
Thanks for the feedback and how would I see if there any vascular compression (like an angle? Iâm not good with computers at all so tried my best. I still gotta wait for my insurance to change to speak with dr.Nalwa should change December 1. I did speak with a local ent months ago he seemed cool he did offer surgery but he doesnât belive there is any compression even though I get symptoms plus didnât see him on the list here so not sure.
Here is some more images I took. There is a gap between one of the styloids :o
Iâm not sure what youâre referring to regarding spam. Did someone flag a post you made? I didnât see anything that looked like spam. Also, this isnât the most user friendly website so I totally understand if you posted something by accident.
.
Youâve done a really great job w/ your 3D images considering youâre not very techy. I couldnât have done as well.
In your new images, your left styloid is very thick at the top & very long. Your internal jugular vein does look like its being compressed on the left side but most likely itâs being caused by the C1 vertebra because in the last image you posted it looks like thereâs a good space between the styloid & the IJV. The IJV isnât visible in any of your images on the right side so Iâm not sure if it also has compression. Do you have any images that show the IJV on the right like the one you included in the middle of the 3 you just sent?
Thank you for sending the additional image of the right styloid. The gap between the elongated styloid & the bit of calcified ligament was obscured by your mandible in the earlier pictures. When you find the right surgeon to do your surgery, you should make sure both the styloid & that chunk of ligament will be removed if possible.
I need to sign off now, but @Jules & others will look at anything else you send, & Iâll check them out tomorrow, too. I hope you can get in to see Dr. Nalwa. Because you have C1 contribution to your compression, you should try to get a consult with either Dr. Costantino in NY or Dr. Nakaji in Arizona as they specialize in doing that type of decompression surgery w/ a styloidectomy.
I meant like I posted a lot of pictures wasnât sure which ones showed the styloids much or not lol. But yeah Iâll definitely look into them. So you would definitely say itâs eagle syndrome right? Iâm not sure whatâs causing what any more :(. Some days are lil better than others. Surgery sounds a bit scary sometimes and talking to the doctors takes time. The wild thing is if I do get the surgery all my symptoms will disappear and I canât imagine if it did. Or it might not help at all if that makes sense. Here is some more pics I tried getting of the right styloid. I do hear a lot of thumping noises in the ear on the left almost like someone is knocking/thumping be for a couple seconds at a time especially after a moderate exercise. Sometimes feel sensations run down my skull. A left stabbing sensation in my left neck the last couple days as well. I know people with pots and pppd experience dizziness and lightheadness and got better with some excercises. And also what do you guys think about this? https://youtu.be/G1qFdwTh6vw?si=oasBLbsrLOr7VdzJ
And one more thing to put out I saw these excercise and seems like it might help the c1 compression you were talking about but Iâm not sure https://youtube.com/watch?v=pFr8k9lm8QM&si=pOw_tmHSMLyrYldJ
So much idk where to start with all this going on haha!
Did the radiologist measure that? It looks huge.
When i see something like that I have to ask, âHow can you not see the problems that could create for someoneâ
You can ask the Doctor who ordered to contact the radiologist for official measurement.
What are those two things that you pointed out? Is one the styloid and one something else that has calcified? Or has it broken off?
Oh wait, it is showing one on each side, right? Visible from that angle.
Nope but dr.nalwa ordered I have to a other scan next month once my insurance works so he can tell me that length but for this image I took 2-3 months ago it didnât say the length.I asked my local ent to get a cat scan. The nurse told me that and also she said itâs the same one they use for surgery (the scan they have to order) but Iâm so confused on where to start. @Isaiah_40_31 said something about a c1 compressing as well idk if dr. Nalwa specializez in that.
Certainly your styloids look long, the left side scarily so! and as @Isaiah_40_31 said thereâs a piece of stylo-hyoid ligament calcified on the right side too. Your hyoid bone processes look quite long as well, so thatâs something to ask about also. They look very close to the blood vessels, so could be causing issues⌠It does look as if thereâs a reasonable gap between the styloids & C1 process which is where thereâs usually IJV compression, but I donât feel that the images are clear enough to comment on any other compression of themâŚWe have had members who have had IJV compression by other blood vessels, nerves or muscles. Given that it might be an idea to try to get an appointment with the other doctors @Isaiah_40_31 mentions as they would evaluate the compression for you, I donât know much about Dr Nalwa so canât say if thatâs the right doctor for youâŚ
Iâd also add in again that on most of your images your neck looks pretty straight, there should be a natural curve; itâs called military neck & is something weâre seeing alot on here, it does seem to be a link with ES, which affects what we donât know, but some members have found symptoms improve if they do exercises to correct it. @vdm posted some good info in this discussion:
List of my favourite resources on YouTube to learn anatomy - General - Living with Eagle
If youâve not had a chance to look at that yet, Iâd encourage you to look into it 
