I’m honestly surprised that steroid injections aren’t available in France. Maybe ask your neurologist about steroid injections to see what (s)he knows.
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It’s available, but not for the hyoid area since they’re not familiar with that syndrome. I’ve seen at least three ENT specialists, and when I mentioned HBS, they thought I was crazy..
So frustrating how much treatment varies from country to country! I’m sure there’s some research papers about HBS, it might be worth getting some translated and printed out to show an ENT?
Here’s a link to the Research Papers category:
Latest General/Research Papers topics - Living with Eagle
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I’ve seen at least 3 different ENT specialists who tell me I don’t have eagles, and who don’t know about HBS, that’s the problem, they think it’s all psychological, one ENT specialist told me “women have more psychological problems”..
That is RIDICULOUS!! Unbelievable gaslighting!! Why can’t they just say they’re not familiar with the syndromes & show interest in learning about them vs making you feel unheard & dismissed?! It’s just not right!!
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Unfortunately, I don’t understand some doctors… it’s a real struggle to get a diagnosis..
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I’m sorry that you’ve been dismissed like this, is such an easy way to get rid of a patient instead of actually looking at scans! 
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I finally had my neck scan with contrast injection. I couldn’t view the images myself on Radiant because I don’t have access to my computer until next week. My husband, who doesn’t know much about this kind of thing, looked at them and sent me this.
What do you think of these images? It looks like the hyoid bone, especially on the right side, is touching the carotid sheath ?
It certainly looks close, & it’s easy to imagine each time you turn your head that movement could bring it into contact, but sometimes the scans from this angle can be a bit deceiving. The axial view can show the impact on structures better. The hyoid processes are quite long though!
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@Calista21269 - It looks like the greater horns of your hyoid may be touching your carotids on both sides depending on your head position. There’s no obvious compression in the images you sent, but , again, that doesn’t mean it’s not happening when you turn your head left/right.
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Thank you for this , next week I’ll have access to my PC and I’ll be able to look at the good images and post them again.
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Even without moving my head, I have throat symptoms like discomfort, dysphagia, especially on the right side, difficulty moving my tongue and talking, and other symptoms like occasional pain in the hyoid bone, cartilage, soft palate, and under the chin because my tongue is tense. And when I move my head, I sometimes get dizzy, but I don’t know if that’s due to CCI or something else..
The dizziness is likely from your carotid(s) being irritated.
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Yes maybe its possible..
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I’ve taken more images from my CT scan with contrast injection; can anyone tell me if they see any indication of hyoid bone syndrome please ?
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@Calista21269 - I’ve annotated a couple of the images. It does indeed look like your left & right hyoid greater horns are in contact with your carotid arteries. The right lesser hyoid horn appears to be calcified & a bit longer than normal. The left side, too, but less so than the right. With your greater horns contacting the carotids, it seems you could have HBS.
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@Isaiah_40_31 has been very helpful labelling your images, I agree with this, from the angle of your images it does look like the hyoid processes could be irritating your carotid arteries, around the carotid bifurcation area.
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Thank you for your comments. So you think I should probably have the HBS surgery? You don’t see a slight compression of the jugular vein on the left by the atlas, or is that just my impression?
Near this bifurcation is the hypoglossal nerve; could that explain my tongue problems? And regarding the soft palate, which is irritated by the glossopharyngeal and vagus nerves, can the vagus nerve be irritated at this level? Because the glossopharyngeal nerve is higher up.
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I can’t see that area clearly enough in your images to comment on any possible compression…
The glossopharyngeal nerve does have a branch which goes to the carotid sinus, so does go to the level of your hyoid bone processes. The vagus nerve runs down the length of the neck too. And the hypoglossal nerve does affect tongue function too, yes.
Re Dr Dewan, who never got back to you, this might be helpful from @YcrowY & @Isaiah_40_31
Hyoid Bone Syndrome - NEW DOCTORS TO CONSIDER - General - Living with Eagle
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