Hi guys. I was encouraged to post a new discussion so I'm following the advice.
My story is that for 1.5 years I've been dealing with various symptoms that no one could pin-point despite all sorts of exams, tests, etc. My CT Scans continue to show as normal. An ENT has diagnosed me with Hyoid Bone Syndrome but the injection he tried in the neck didn't help me at all. He said my thyroid cartilage is rubbing the left hyoid bone but he said I'm not the atypical hyoid bone syndrome patient for this reason. Another ENT has confirmed this diagnosis. Both have told me I do not have Eagle. We think an injury happened 1.5 years ago when my 8 year old son was playing with me, put his arms around my neck, clasped his hands and threw all his body weight backwards.
None of the doctors in my area seem to want to do the surgery as they have no experience with this exact sort of injury. They said they've worked with/around the hyoid due to throat cancers.
I have spoken with Dr. Berke's office in Los Angeles and they asked me to send my records to them which I'm in the process of compiling. I've also left a message with Dr. Marshall Smith's office in Salt Lake City.
Anyone else had hyoid bone surgery? Or a surgery to trim the hyoid bone or thyroid cartilage in general? Any advice about the recovery? Or surgeons? I'm willing to travel across the map to find experts.