Hey,
I’m Roi Hacham. here. I’m 27 years.
I wrote here once 2 years ago after my failed surgery to eagle syndrome. Unfortunately. The problem is still with me and the pain is much worse. I am begging for your help.
I will try to explain myself and be as short as I can be.
More than three years ago (April 2019) I started to feel an odd pain in my left side of the neck. After Few days I remember I literally felt three is a bone in my throat that I couldn’t reach.
For 6 months I did all kind of tests, MRI, and more. Doctors said to me all kind of things, but none of them mentioned the eagle syndrome. At that time, I didn’t know it existed.
Obviously. During this time I suffered heavily. My main symptoms were the feel of the bone in my throat that led to immunes pressure in my throat and neck, but the worst pain was when I spoke. I literally felt the pain gets harder and harder as I speek. I had times over those 2 years I couldn’t speak for days-weeks, as the pain was so hard. It changes my whole life.
Generally, The pain was at degree of 6/10 for month, and then 10/10 for a month, for over 2 years. Over 2020, the pain became more long, and the waves of the pain became more often.
Approximately After a year from onset of pain, after multipole drugs and testes I tried didn’t help, Based on my description, the prof suspected I have eagle syndrome so told me to make CT scan, I have done so , and it showed that mu styloid on the left side of the neck is 3.6 cm. based on this, and my description, the prof said I have the syndrome.
At this stage (middle 2020), he recommended not the make the surgery as long as I can stand the pain, because he said it was so rare and the surgery a bit dangerous,
Since then, as I said, the pain became harder and harder, from March-Aperil 2021 I almost couldn’t speak at all. Therefore, I consulted with him, and we decided to make the surgery to remove a part of the styloid. The professor recommended the intraoral way, with the davincy robot which he was familiar with.
I was desperate to make the surgery as I couldn’t cope with the pain anymore. Nothing I did or tried in those years helped.
The surgery was scheduled, on June 8 2021.
I stayed at the hospital for the first 5 days, as I was in immense pain and the prof and doctors saif it is better for mo to stay so they can follow my recovery.
The, The following 3-4 weeks also were very hard, immense pain all around my throat, tonsils and neck. I could barely eat, speak and swallow. I was a bit frustrates, But, I must say i felt baby steps, and the prof said it wat natural healing so i tried to stay calm, and was hopeful it will get better. As days passed, I was able to eat more, and speak (still with much pain) a little bit more.
As I said, prior to the surgery. my main issue was pain came from speaking.
back to the recovery - after 4-5 weeks, I had feeling exactly the pain that I had prior to the surgery. Again, I cannot speak because of the pain.
it has been over a year and a half since the surgery. I can say now in confidence, that the surgery didn’t help me at all. My day to day is almost impossible – during most of the day I cant speak. There are some letters that are harder for me to say, for example “r” or “ch”, because those are letters that you pronounce from the inside of the neck.
I am in so much pain right now and so frustrated. I was sure that after almost 3 years of immense suffering, the surgery would give me my life back.
One of the CT check showed that my hyloid bone is also very big. I suspected that my pain maybe comes from this, but the professor said it wasn’t conclusive.
In conclusion, I am just desperate to hear another opinion and to understand what exactly my issue is, as it seems no one knows, and whether something that can help my pain. I just want a part of my life back.
