Feeling lost, unheard

Certainly your symptoms fit with ES, I also had a whiplash injury & had traction & manipulation treatment by a doctor which made symptoms a whole lot worse! Mine did settle down though & so it was quite a few years before it flared again & I got diagnosed. I had TN as well, ES is a cause of TN, where you’ve marked on your scalp is one of the branches of the trigeminal nerve, I had (& still do occasionally) get a sort of pressure/ boring/ burning feeling in that same place. The trigeminal nerve also has branches which go to the eyes and the lips, as does the facial nerve which is also commonly affected.

The glossopharyngeal nerve can also cause pain in the ear, this & the vagus nerve can cause trouble swallowing , choking etc.

I wonder if you might have internal jugular vein compression, as you mention feeling unwell laying flat; this can cause dizziness, an off balance/ rocking boat sensation, head & ear pressure…

Looking at the images, it looks as if you have an elongated styloid one side, & calcified stylo-hyoid ligament the other, although they don’t show up very well on the scans from what I can see :thinking:

Hopefully others can chip in about that…

Unfortunately the only way to see which symptoms are caused by ES is to have surgery & see what resolves; no doctor will guarantee that surgery will cure everything, but if you see an experienced doctor then you’ll have the best chance of a good result. Have you looked at the list? I’ll put a link here in case you haven’t, but it’s worth travelling further afield to someone who’s done lots of surgeries, I don’t think your doctor is on the list? Some members have had to fly across country to see the best doctor…

Doctor Lists – no discussion - Symptoms and Treatments / Doctor Information - Living with Eagle

And as your symptoms sounds like nerve pain from the trigeminal nerve, it wouldn’t hurt in the mean time to try some other medications as your doctor suggest, they might help you more with that.

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