I’m so sorry that Dr H hasn’t followed up with you as he said he would & that you’re still not improving…
@Chrickychricky has posted some very interesting info about neuroplasticity , I don’t know if that would be at all helpful:
The Science Behind the Symptoms is a great podcast. Attaching a link to an episode on POTS - General - Living with Eagle
And also ’ Lots of good information in general regarding neuroplastic symptoms on the website symptomatic.me ’
We’ve also had a few discussions about the benefits of some supplements recently, especially around IJV compression/ brain fog, like creatine, and there’s some other info from @Chrickychricky in here too:
ES Information- Treatment: Pain Relief, Medications and Alternative Therapies - Welcome / Newbies Guide to Eagle Syndrome - Living with Eagle
We’ve had a couple of new doctors suggested for the CT venogram manometry if you were going to need any further testing although it doesn’t sound like you need that-
Dr. Andrew Ducruet, cerebrovascular surgeon at Barrow
Dr Caton at Mt Sinai South Nassau.
I hope that you can find something to help you
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