I’ve seen POTS come up on a few threads and then I was listening to this recent podcast by a couple of founding experts in neuroplastic symptoms so I thought I would post it in case anyone is interested to learn about it. They did a recent one on long Covid as well. Cheers!
Thank you for the link, @Chrickychricky. With the number of members we have who suffer with POTS, I expect this will provide some insightful information for all who watch/listen to it.
Thanks for that info @Chrickychricky ![]()
Chricky, thanks for posting this however I take this one with a grain of salt. I found the session to be a bit long and left waiting for some answers. It reminds me of some of these info-commercials trying to sell the next best supplement or protocol to cure all your ills but you have to listen to the spheal for 20 minutes before you get to the end.
The was a big pushback on some paper put out a few months back that was in the Chronic Pain Partners group (patients were not happy about this) that essential said its all in you head and the ties to psychiatric conditions to POTS and chronic pain conditions. The pain partners and other patient groups were not happy with this kind of labeling.
Having had a daughter with severe hEDS, MCAS and POTS that started at age 7, this video is not representative of many POTS patients. Although mind-body connection is an important aspect to consider with any chronic illness, this approach is NOT the save all to end all. This patient has a history we are not being told the whole story about. Clearly she had addiction, trauma and psychiatric issues and we know nothing about her early life. I can say from personal experience (50+ years) and done in-depth study and seen many specialists that hEDS and the nerve problems it can cause can not be cured by neuroplastic science. Ive attached a scientific paper if you want to know more about this science. I have no doubt there is some positive sides to this.