Here are the images I can send.I don’t know what to look for so…
@Veroguilnec - You did a good job of making your CT into 3D images. The sagittal plane usually provides the most helpful pictures for us & perhaps the frontal plane, too. I’ve annotated a couple of the pictures you posted:
Your right IJV is quite distended down near your collar bone which can be a symptom of Thoracic Outlet Syndrome. Are you having trouble with your right shoulder & arm? It also looks like your styloid may be resting on your right IJV & C1 appears to be touching it. Both could be causing compression when your head is in certain positions.
It doesn’t look like the greater horns of your hyoid are in contact w/ your carotids, but they do look close to the carotids so perhaps make contact when your head is not in a neutral position. It’s hard to say for sure w/o dynamic imaging (w/ your head in positions other than neutral).
In this transverse plane slice that shows the area around C1, your IJV is very close to your styloid which presents more evidence your styloid could be causing some IJV compression. I can’t see your left IJV at all.
I agree with @Isaiah_40_31 that you can see the right IJV on the image that she’s labelled, but no sign of the left- this is strange, but in rare cases some people only have one IJV, so this could be the case, or maybe it’s so small or compressed it can’t be seen? It’s a puzzle, and if your doctor was more helpful I’d want to ask about that! (If you did have only one, & there’s even slight compression on that it could explain symptoms.)
Your styloids do both look quite thick at the base as well as being elongated.
Hello thanks so much for your help! I would really thanks you both in real life!
About my angioscanner des TSA (en français) I phoned yesterday to the radiologist for asking why they don’t speak about jugular veins. Their answer: “if there is no compression on carotids it is ok”!!! I said “no” and asked a second report. So for that I had to go to my doctor today and ask her to request a second reading (she was unhappy but she did it…So I have to wait…I hope that they will do it properly this time
But on the “angioscanner” it was noted a problem on first thoracic vertebrateT1. So the doctor prescribed an MRI of the thoracic spine. And “miracle” as since another patient cancelled, I had the examination immediately.( in France we have to wait several months!)
No tumor as suspected, but a malformation of the artery in the vertebrae. I will have the report in 2 days..and as soon as I have my all explorations I write to Dr Aghayed( He send me a link to do that)
About radiant viewer3D I only had time to convert a few images before the software was disabled.If needed, I will buy enough for one month’s use…
I wish you a good evening.Thanks
@Isaiah_40_31 Thanks for the anatomical planes.. At the end you could be a doctor!![]()
@Isaiah_40_31 no problem with my right arm…My left arm in 2007 had neurologic symptoms and Vitamine D seemed to have stop that!
But when I sleep I had to change ,left lateral side and right lateral side, very often for not suffering numbness and tingling
Numbness & tingling are part of the symptoms for TOS but if that’s tolerable, you can ignore it for now. No need to fret about symptoms that you can live with. ![]()
The arm symptoms could be from ES, the accessory nerve, or from normal wear & tear on your neck if it’s just at night, so as @Isaiah_40_31 says no need to look into TOS for now…
I’m glad you were able to get the MRI so quickly, hopefully there’ll be nothing amiss there. And hopefully they can re-read the scans to look at the veins, I’m sure Dr Aghayev will want to see those images. That’s if they did scan when the contrast was going through the veins, I hope so
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Tonight I send to Dr Kamran Aghayev all my investigations.
I also asked my doctor to have a new report for my angioscanner TSA…but I’m not sure in France I can have that , jugular veins don’t interest the radiologist doctors..!!
For my thoracic spine IRM yesterday the radiologist said” No tumor, but an artery malformation in a vertebra.” and for “réticulation on the top of lungs” it is a consequence of severe pneumonia.( (Probably the flu several years ago)
@Jules @Isaiah_40_31 My neck is indeed used. I was a nurse, and the handling techniques for lifting patients in bed were used by us. We were taught to place our forehead against the forehead of our partner to create a frontal arch. Looking back, I honestly think it’s not ideal (even if it’s effective in terms of lifting a patient without hurting them or straining their arms).
Not to mention that in 1988, an osteopath violently manipulated my neck without my consent. (My gynecologist had referred me to this doctor for lower back pain, and he refused to give me a sick note and sent me to this brute!) The result was pain for years.
I’m so glad you don’t have a tumor. Was there any suggestion that the artery malformation is causing a problem? I’m sorry you’re lungs are showing long-term signs of the time you had pneumonia. I hope that doesn’t affect your breathing at all.
I agree with you that forehead to forehead doesn’t seem like an ideal lifting position. I can imagine it would cause terrible neck strain for the nurse over time & may be part of what led to you getting ES. The osteopathic manipulation didn’t help anything either & may also be a contributor to your ES diagnosis.
I’m glad you’ve gotten your scans sent to Dr. Aghayev & hope you hear from his office very soon. Please let us know.
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Good there’s no tumour! I was sent to a doctor who did traction & manipulation on my neck after a whiplash injury & he made my neck way worse too, so I can sympathise with you over that…Did alot of lifting in my job for a while & that does sound unusual & not a great technique! I was in the ambulance service here in the UK- so many people had to leave with back injuries as we had to lift every patient. It was only when the bill for sickness and pensions for people permanently injured was high enough did they finally invest in the proper equipment which had been available for years to help!
I hope you hear back from Dr Aghayev soon too ![]()
Hello here is the answer Dr Aghayev :”So you need bilateral internal jugular vein surgery.And also you may have TOS.That needs more investigations.But the main as you see you have bilateral vein compression”
He send me two videos but I can’t understand because he speaks in English and I can’t find application to translate (I am quite bad in new technology) . Could you help?
That morning I had my ENT appointement and the doctor don’t stop to shout above because I saw others doctors who send him reports( against my agree!) . So he said : dysphonia isn’t a symptom of ES, compression jugular should be explored with a angiogramme veineux but he dosn’t want to prescribe ti.See with your general doctor.That doctor is quite lost and don’t know each time to prescribe( and Moreover, she doesn’t care) .The ENT said your cervical spine is very bad…so go to a rhumatologist .The vertebraes could be the responsible of the pain .
One of my great fear is who could take care of me in France if after the surgery in Türkiye had post-operative complications? He was so angry about the “medical nomadism” he claims to be causing me to be sent away… It was impossible to get him to admit that the first time he had asked me not to come back before the next scheduled appointment!.. He asked me to see the other ENT ENT t who, according to him, knows absolutely nothing about eagles !!!
I am so so so lost … As soon as I came back home I go in my bed!
@Veroguilnec, Can you upload the videos Dr. Aghayev sent to you in your reply to us here? You can either drag & drop them off your desk top & into the dialogue box where you type your reply or use the underlined up arrow
above to upload them into your reply. I am willing to try to get them translated into French for you. Alternatively do you have a friend or family member who could translate what he’s saying for you?
Though it’s unlikely you would have complications after your surgery, you are wise to consider the possibility. Some of our members who’ve traveled to Turkey for surgery have stayed for about 2 weeks afterward just in case there was a problem. Would you be able to do that?
I’m so sorry that the ENT refused to listen & ignored the reports you gave him, & wouldn’t order another CT, it’s so frustrating! And hard for you that translating everything is tricky, especially with technical medical terms…
Good that Dr Aghayev confirmed the jugular vein compression, I would be wary of exploring TOS as your symptoms are minimal, & concentrate on the ES, which I’m sure you would do anyway.
I don’t know the answer to what would happen if you needed any treatment after going to Turkey, obviously you’d have to try & research that with your own healthcare system. In the UK NHS we have a Patient Advice & Liaison Service to make complaints, so you have anything like that?
Ben’s Friends do have info about advocating for yourself, I don’t know if that’s at all helpful:
Latest Patient Self Advocacy/How to Self-advocate and Be Heard topics - Living with Eagle
Sending you a hug ![]()
Thanks thanks so much! With the help of my husband (several hours) we managed to upload the two videos et and then to translate the dialogue. (only in writing but it is enough) . I send you them.
I am quite surprised and a little worry Dr Aghayed said it is anonymous scanner.I have send the image without hiding my identity…I hope it is really my scanner ![]()
look at them.doc (25 KB)
traduction n°2.doc (34 KB)
T
Hi @Jules I agree with you if I have TOS (I haven’t done any research yet to know really what it is..) but for the moment, that’s not my main concern. I was told a long time ago that I had an extra pair of ribs (seen on a chest x-ray at work) mais I live with that problem quite well ,only only some numbness and tingling at night…
And if I had to pay for two surgeries I haven’t enough money ![]()
@Jules Before going in Turkey I “d like to a second
opinion from a specialist who would say the same thing. Who would you recommend?












