I’m in the UK. I have chiari malformation type 1, disc bulges in the neck and elongated styloids. So gone around in circles since 2016. Last year I saw Dr Rupert Obholzer and he looked at all my CT scans since 2012 and ruled out chiari. I initially thought I might have CCI as I have balance issues. I did some vestibular rehab and it had helped a bit. My biggest issue is continuous jaw and temple pain and pressure. Styloids are 4.2cm on left and 4.6cm on right. I do wear a mouth guard for tmj but have no clicking/popping in the jaw. I can also fully open and close my jaw too. I have finally decided to see Mr Hughes and if he agrees will opt for surgery as I’ve lived in pain for very long and can’t carry on like this anymore. x