Due to the symptoms I have.
I agree with you wholeheartedly.
I have paid to see Mr axon this Friday in Cambridge privately. I hope he can take me as a NHS patient 
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Good that you’re seeing Mr Axon, I hope the imaging and report is enough for him to agree to take you on… If you have pulsatile tinnitus (hearing your heartbeat in your ears, or whooshing sounds etc in time to your heart beat) please mention this to Mr Axon as he’s really interested in that & is more keen to accept patients with this symptom.
Let us know how you get on… 
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I have an appointment with him now by zoom next Thursday as there wasn’t enough time for him to request my records. Another £500 
I have mentioned the fact that when I sleep on my left side I do hear my heart beat in my tinnitus which is true.
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I’m sorry your appointment was moved ahead, @theFury, plus will cost an additional fee. So Mr. Axon charges extra for a zoom appointment?
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Hi. Yes. The 20 min appointment was £275. Now the longer zoom appointment which he goes through my scans is £500.
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The price is ridiculous.
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Unbelievable isn’t it. But seriously, I can’t put a price on my health and well being. I need this sorting asap
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I hope that it’s helpful, at least he does zoom appointments to save you travelling, some of our international members have had appointments this way. I hope he’ll help you, will be thinking of you on Thursday.
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This is the response after nearly 3 months. Condescending tw*t. 
Absolute bullshit. If you look at opgs regularly then you should really see the massive styloids clearly on the opg! I am raging.
Absolute bullshit. If you look at opgs regularly then you should really see the massive styloids clearly on the opg! I am raging.
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@theFury! VENT ON! VENT ON, my friend! We’re here for that. I completely agree with the reason you’re frustrated. Just an FYI - stress increases ES symptoms. Try to find a way to let go of Dr. Singh’s ignorance & pathetic response to your emails & move on.
As lame as this may sound, ES flares can sometimes be calmed just by doing relaxation breathing. There are many YouTube videos on that subject. Might be worth watching a few & trying out what they suggest. Other things that can help are getting outside (weather permitting) & taking a nice long, slow walk (or whatever your body is able to accommodate), enjoy the nature that surrounds you, focusing on that, & defocusing on your frustration. An indoor option is to take a warm 15 min. bath in epsom salt w/ some calming music playing in the background. Usually 1 cup of epsom salt is all you need for a tub full of water. 
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So frustrating for you, I’m sorry that you’ve been dismissed!
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