Just found regrowth mentioned in an interesting article:
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Hi! Thanks for your kind response. I’ve had too many surgeries (and some incompetent doctors performing them unfortunately).
It all started with Chiari Decompression surgery (with a syrinx). Then a cranioplasty two years later which has been revised 4 times!
Then came the stenting of my right IJV which was a disaster which wound up being not jugular compression but in fact Eagles. Unfortunately the jugular dr decided when ballooning the stent in the right, that he should stent the left 
, which went horribly wrong and I developed a blood clot and then the need for a second styloidectomy and ballooning again. Now both are fractured and clotted over. Im seeing a vascular doctor tomorrow because they keep getting worse!
Also have had a fusion and an intralabrynthine hemorrhage in between. I have EDS which of course plays a part in everything. Hoping to have some answers tomorrow and with my Eagles doctor ASAP. Saw an ENT yesterday about my sinus issues and we looked at the offending styloid and it is not huge but definitely right up against my jugular.
WOW, LoriW! You do have your share of health challenges. Please keep us posted as to what you learn from the vascular doctor. Do you mind sharing who did your ES surgery i.e. is it someone from our list or someone we should add to our list?
I hope you get answers that make sense for you & a path forward so you can fully recover.
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So sorry to read about all your struggle with health and doctors. That’s nothing someone should have to go through. Many positive thoughts from me to you. Wishing you successful therapy and full and quick recovery!
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Oh Lori, that sounds terrible, so hard for you…I hope that you can get some answers & some treatment. Sending you a hug 
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Well, the vascular surgeon was incredibly helpful. I’m attaching a medical publication because this is exactly what is going on and explains it so much better than I could even attempt to! He’s going to do ultrasound and Doppler testing next month to check all my veins and arteries to check my carotid arteries and to also check for thoracic outlet syndrome. As usual everything always leads back to my wonderful maddening EDS. Hope you all find this helpful. Please feel free to ask any questions. In laymen’s terms, my left jugular vein is being squeezed by both my styloid and my C1-2 process. Which is why although my right side, although more narrowed, does not hurt like the left !
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I’m glad that he’s helpful & you’re getting some answers…just hope that it can be treated!
Thanks for the article, very interesting! I’ve put it in the research papers section too.
@LoriW I am sorry to hear about all you have been through. I also have Chiari 0 which has become symptomatic, and AAI/CCI. May I ask how many times have you had styloidectomy? Did you have to have it done multiple times because they grew back?