I’m so sorry that you’ve had so many struggles with your health and for so long! Sadly it’s not that unusual on here ![]()
There are doctors in the UK who would do the surgery privately, Mr Axon in Cambridge or Mr Hughes in London. Plus there are some in Germany, Norway, The Netherlands and Italy.
Here’s a link to the doctors list:
Doctor Lists – no discussion - Symptoms and Treatments / Doctor Information - Living with Eagle
We do also have a list of doctors who have authored research papers in the Doctors Info Section- some may just be researchers & not surgeons, but some detail surgeries, I don’t know if that’s a possibility; there’s a dental clinic in Saudi Arabia but not sure if they teach & do surgery as well, here’s a link to the paper:
Elongated styloid syndrome mimicking temporomandibular joint disorders: a case report and short literature review - PubMed (nih.gov)
Otherwise the best doctors to see are ENTs, Skull Base surgeons/ Otolaryngologists, Head & Neck Cancer surgeons, or Head & Neck Neurovascular surgeons, whether there’s any one more local to you that you could approach?
I’m not sure what your insurance covers or how it works, we have had members in the US system who have been able to appeal & go out of their network as they’ve been able to show that there is nobody qualified to do the surgery in their network. Whether there’s any appeal system you could try so that you could see Dr Osborne or one of the other US doctors?
Hoping and praying that you are able to get this sorted
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