I Feel so alone and sad! :'( The pain is unbearable

Ya i know the feeling and pain. Trust me!!! They never took the other side out and he won’t because I had said the other side that he took out was still causing me pain. I should have lied but I guess I’m honest. He won’t even return my calls. My thyroid cartilage licks and rubs against everything now…severe styloid pain and throat cartilage pain…Not too mention I have a Spinal Leak as well at that took almost 3 years too get diagnosed because everyone said my scans were “normal” when they actually weren’t and I’m leaking really bad in my spine…So something has too be connected too all of this…I swear my spine is what is causing this whole mess…but who will fix it?? no one thats the problem…My spinal leak is a hard case…they can’t find exactly where I’m leaking from…somewhere starting in the C7 all the way down too the bottom of the thoracic spine…wow I’m a tough case and battling pain from eagles too is no joke!! talk about rare conditions I have…ugh!!!

Kelx,
I’m so sorry to hear that you have serious complications in addition to ES. I will be praying that you are able to find a doctor who has the desire to work to find a solution and is willing to deal w/ the ES & the spinal leak even if it means referring you to other doctors. You’ve traveled a long, hard road, my friend. I can’t imagine doing all this while also trying to be a mom. Good for you for doing the best you can with all the health trouble you’re having!

Please see my post, “Game Plan and Associates Symptoms.”