@Misael - If you have/had IJV compression/VES & had only a styloidectomy without decompression of your IJV, that could explain the remaining terrible head symptoms you have. Your breathing issues & anxiety/panic attacks ring of vagus nerve irritation or compression. If you can get a 3D CISS or FIESTA MRI scan to look at the course of the vagus nerve through your neck, it could be very telling as it may also need to be decompressed.
An upright MRI is used in the US to diagnose CCI, but hEDS is more difficult to diagnose. Our member @Snapple2020 posted a lot about EDS in the past so looking at her posts could be very helpful in that regard.