I thought I could fly :)

I appreciated your “nod” to the Lorem ipsum text. :upside_down_face:

So, wearing my moderator hat, I have to tell you not to settle with “no” for an answer to ES being the cause of your symptoms. Jules wrote the posts in the links below which have excellent information about ES backed up by links to research papers. If your doctors aren’t fluent in English, I hope they can use Google Translate to read what she wrote. This is good ES educational information & will hopefully expand their understanding.

Doctors who don’t know much about ES don’t seem to want to learn about it. It’s easier to turn a patient away than to do the research to self educate about a health issue that has also been called the Suicide Syndrome (because symptoms can be so extreme that seems like the only “out”). There are people who die from ES (strokes from erosion of the internal carotid artery) though this is extremely rare.

If you continue to run into a “brick wall” as you try to get help, your alternative would be to ask for a prescription for nerve pain meds to help reduce the symptoms. These can take some weeks to start working, & the dose can require adjustment to find what works best for the patient. There are two categories of nerve pain meds - anti-seizure & anti-depression. Neurontin (Gabapentin) & Amitriptyline are two that are often mentioned on this forum but there are multitudes of others. If one in a given drug family doesn’t work, another related one might. It can take some trial & error to find the right one that works w/o causing significant side effects.

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