Welcome! I’m still on my diagnostic & treatment journey but I have difficulty breathing as well. For me, it feels like my throat is constricting and I’m working really hard to pull air down. I also get laryngeal spasms that completely cut off air flow. Talking is one of my triggers too. I’ve also lost some of my vocal range and ability to project. I have IJV compression on my left side (looks like it’s due to my C1) and my symptoms tend to be more left-sided overall.
I want to recommend speech therapy as it really does help! My voice stays healthier for longer and I recover faster since starting speech therapy. Weirdly, migraine-targeted Botox helped too but it didn’t completely get rid of symptoms (I’ve only had it once, my next dose is due soon)
Because of your voice and breathing issues, I’d highly recommend seeing an ENT that is knowledgeable about speech & swallowing disorders (laryngology) in addition to the other doctor’s you’ve seen; ideally someone who is aware of ES and other conditions with overlapping symptoms, like spasmodic dysphonia. Of the neurologists I’ve seen, my movement disorder neuro and migraine neuro have been the most helpful (my general neuro really didn’t know what to do with me).
The dry throat is interesting; I wonder if it’s actually dry or more of a neurological sensation. If it’s actually dry, it makes me wonder about rheumatological conditions like Sjogren’s. I have dry mouth too but I’ve had that years before any of my other symptoms popped up so I think it’s a coincidence for me.