Between the ten members on the Team in addition to Their Primary Diagnoses of *AVM, Cancer (several forms), Psoriatic Arthritis, Congestive Heart Failure, Lupus, Fibromyalgia, Extreme Sleep Disorders, Ehrler Danlos, Idiopathic Seronegative Spondylopathy, **Acalculous gallbladder disease, *and Ankylosing Spondylitis, also can lay claim to:
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Combined age: 520 (oldest 75, youngest 12)
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Cancer Survivors: 3
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Stroke Survivors: 2
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Joint replacements (so far): 9
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Spinal Injuries: 2
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Total Surgeries: 83
More importantly -
Bad attitudes and depression helped and the ability to self advocate help by Ben’s Friends: 10
This team is dedicated to hike/paddle 500 miles over 5 days in August to raise enough money to start 10 new BF communities. If you haven’t shared our fundraiser and story with your networks yet, Could you? Would you? Not only will it help reach our financial goal but raise awareness of Ben’s Friends and Rare disease:
https://www.gofundme.com/help-support-rare-disease-communities