@Trisha - It has been noted that some people who have IJV compression have other vascular compressions in their bodies which can cause vascular TOS & Nutcracker Syndrome. MALS (Median Arcuate Ligament Syndrome) is sometimes the 3rd problem suffered. It’s also been noted that many of the people who have multiple compressions also have hypermobile Ehlers Danlos Syndrome.
We do have at least a few members who’ve only had cervical IJV compression & vascular TOS w/o the others I mentioned.
Someone just sent me this TOS information which should be helpful for you:
ChatGPT:
Thoracic Outlet Syndrome (TOS) is a group of disorders that occur when nerves or blood vessels (the brachial plexus, subclavian artery, or subclavian vein) are compressed in the thoracic outlet — the narrow space between your collarbone (clavicle) and your first rib.
There are three main types of TOS, depending on what structure is being compressed:
1 Neurogenic TOS (nTOS) — compression of the brachial plexus (most common, ~90–95% of cases).
2 Venous TOS (vTOS) — compression of the subclavian vein.
3 Arterial TOS (aTOS) — compression of the subclavian artery (least common).
Symptoms
- Neurogenic TOS (nerve compression)
• Pain, numbness, or tingling in the neck, shoulder, arm, or hand
• Weakness or wasting of hand muscles (especially the thenar/hypothenar areas)
• Heaviness or fatigue in the arm with use
• Symptoms may worsen when arms are raised or when carrying heavy loads - Venous TOS (vein compression)
• Swelling of the arm, hand, or fingers
• Blue or dusky discoloration of the arm
• Heaviness or aching, especially after activity
• Sometimes visible enlarged veins on the shoulder or chest - Arterial TOS (artery compression)
• Coldness, pallor, or bluish color of the hand or fingers
• Weak or absent pulse in the affected arm
• Numbness or pain due to poor circulation
• In severe cases, small emboli can cause ulcers or gangrene in the fingers
Causes and Risk Factors
• Anatomical abnormalities (e.g., extra cervical rib, abnormal muscle attachment)
• Poor posture (rounded shoulders, forward head)
• Repetitive overhead activity (e.g., athletes, painters, typists)
• Trauma (e.g., whiplash, clavicle fracture)
• Obesity or muscle hypertrophy narrowing the thoracic outlet
Diagnosis
• Physical exam (provocative maneuvers like Adson’s, Roos, or Wright’s test)
• Imaging (X-ray, MRI, ultrasound)
• Nerve conduction studies (for neurogenic type)
• Venography or arteriography (for vascular types)
Treatment
• Conservative management: posture correction, physical therapy, activity modification, pain management.
• Surgical decompression: in severe or vascular cases (removal of cervical rib, first rib resection, scalenectomy
Thank you for your response Isaiah, ugh… now something else to worry about. Have you seen any pictures of TOS? Does this photo look like it to you? I converted my chest CTA on radiantviewer. Pretty crazy to see. I also chat gpt’d and got these same details, so crazy its so smart. Its helped me a ton.
I recall seeing one other image on our forum that looked similar to yours, & TOS was also discussed in that case. I’m sorry I don’t remember who it was though.
I’m sorry you have that to face, too. The general consensus has been it’s best to start at the top & work down, however, if your potential TOS symptoms are a lot worse than those caused by cervical compression, I don’t think it makes a big difference if you were to have the TOS taken care of first.
Just had another thought that if the enlarged vessel in the image you posted is an artery, it could be part of what’s causing your stroke-like symptoms so you’d want to get that taken care of sooner than later.
I totally agree with you! I will be making an appointment with a Vascular TOS specialist asap to see what they think. Hopefully I can find one in Utah 
update on my Right side styloidectomy and jugular decompression surgery: everything went well, I‘m 3 months out, I’m starting to feel less stuffy in my face and eyes are less blurry, ears feel less underwater, haven’t had a big stroke like episode since before surgery! Thank goodness. So it’s definitely helped, they are wanting to do the other side. I see Dr Hepworth in person on November 13th to get another jugular ultrasound and hopefully get my left side scheduled. The left is worse, it’s the second side as my very small left transvers sinus and the thoratic issue seen in the attached pic. They did the right side because my jugular was dominant, they thought it would help the blood flow which I think it did.
I’m glad that you’ve found the first surgery helpful, we often see members who have needed both sides to be done before they can really see the benefits so hopefully more will be resolved if you do opt for another surgery, let us know how you get on with Dr Hepworth!
Re ChatGPT, I would be a little wary of relying on it too much, it’s a good tool to give you some ideas, but one member said that they were given a diagnosis and answer quoting some of the info I’d put in the Newbies Guide & I am definitely not a doctor 
Thanks for all the kind words, I definitely feel like both sides will benefit me, I just wish my insurance would cover it🤦♀️
Oh wow! That’s crazy what ypu said popped up. Yes im definitely not going off of Chat GPT but it sure is a helpful tool.