Hi JDB,
Since you have one doctor that says you have ES & another that says you don’t, a third opinion might be in order. So before the ES theory comes to a full halt, it would be good for you to get an opinion from one of the very experienced ES doctors on this forum - Drs. Samji, Cognetti or Milligan. I don’t think Dr. Milligan does phone consults, but Samji & Cognetti do.
If you do have a copy of your CT scan & are willing to post it, we can also give an “unprofessional” opinion here (since we’re not doctors). We would prefer a 3D image if possible. SnappleofDiscord posted a detailed description of how to convert CT slices into a 3D CT if there are no 3D slides included w/ yours.