I’m not sure where you’re located, but you could look at the list of doctors familiar with ES
https://forum.livingwitheagle.org/t/us-doctors-familiar-with-es-2019/4752?u=anharris
https://forum.livingwitheagle.org/t/doctors-familiar-with-es-countries-outside-us-2019/4753?u=anharris
Hopefully you can find someone close who has experience and get an appointment with them.