I think you do have compression on your right too, so that could explain the pulsatile tinnitus on that side…I think the doctors who are knowledgeable with ES probably would look at the scans & evaluate your symptoms too, I would hope! The leaking ears does sound as if it could be CSF, some members have had leaks from high pressure. Apparently you can get it tested to see if it is if you can collect it! Headaches are common with intracranial hypertension, yes, but also those & migraines are common with ES too. If you haven’t tried sleeping propped up at night then see if you can, it helps with the pressure…unusual that they are relieved laying down, but it could be that you’re alternating between high & low pressure- high pressure causing a leak, then because of the leak you go into slightly low pressure giving you a headache? Other members have experienced this. Rotten for you 
Not sure about the itchiness on your neck! Maybe a weird nerve thing? Have a look in the past discussions, here’s a link to one mention I found:
Continue to have symptoms 2 years after - #17 by mikeg
Great that you have BUPA ! I’m not sure which of the doctors you’d be able to see with that; Mr Axon is very good & experienced with IJV compression, plus has done lots of research into pulsatile tinnitus so is very interested in that. But no, he doesn’t do C1 shaves or remove the ligament if it’s calcified, I can’t see any calcification on yours apart from the bit connected to the styloid which wouldn’t be an issue…The hyoid might not be an issue, can’t see enough to know…
If none of the doctors on our list are available with Bupa, maybe search for a head & neck neurovascular surgeon as they’re used to working in the same area? You could always ring their secretary to see if they are aware of ES?
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