We may well have mentioned it before, but quite a few people have had their scans looked at by Kjetil Larsen at msk neurology- is that a possibility? I think he’s doing a medical degree now so not sure how much he can do at the moment…
Here’s a link to the discussion about him:
New Here … not diagnosed yet UK - General - Living with Eagle
I just wish there was more we could do to help you 