A few of us ES sufferers are meeting in Cardiff this Thursday 7th March 2019. If you would like to join us please let me know!!!
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Great that you’re getting together, but a shame there’s so many of you…& ES is supposed to be rare! Have a great time!
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HI Jules, In the future do you think there would be interest in a UK wide gathering (meeting up in a central location). Do you know roughly how many ES sufferers live in the UK? (or how many people on this site reside in the UK? ).
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We used to be able to search for members from different countries, but I don’t think we can now the site’s changed… not sure how many are from UK & active on here now, but it could be asked as a discussion?
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