Poor you, it sounds like you have some difficult decisions to make without much info! It’s not something I’ve any knowledge of so can’t really help…One of our UK members who had IH & jugular compression (but wasn’t able to get the styloidectomy here) I think was diagnosed with a spinal CSF leak, @Natty04, but not with the cysts that you’ve been diagnosed with. Here’s a link to the discussion with her update, I don’t know if it’s at all helpful or if you could send her a message:
Eye vision pulsing - General - Living with Eagle
If the jugular veins are constricted enough to cause increased intracranial hypertension then that can cause CSF leaks if there’s a weakness somewhere, we have had a few members who’ve had that…@JustBreathe has had alot of issues.
I guess you’ll have to be guided by the doctors with this one, do you know how long you’ll have to wait to see the vascular doc that Dr Hepworth’s referred you to? Might it be before you see the spinal doctor?
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