Hopefully if it settled last time it will settle again…if you’ve been checked over at the ER I’m sure that they would’ve picked up any heart problems. Try to reassure yourself with that. The chest tightness could simply be from anxiety, what relaxation techniques have you tried? I’m not trying to fob off all your problems as anxiety, I know members have had plenty of that from doctors! But I know from my own experience how pain & fear can feed off each other, causing more inflammation & muscle tension, more pain, more stress etc. It might be worth trying even simple relaxation exercises at night?
‘You keep him in perfect peace whose mind is fixed on you, because he trusts in you. Trust in the Lord forever, for the Lord God is an everlasting rock.’ Isaiah26:3,4
Who did your surgery robotically? Was it Dr. Hackman?
And thank u jules 
Yes. My favorite Doctor I’ve ever seen.
Good to know, thanks. I just sent my CT disc to Cognetti, and Hackman was my next choice.
Fred
FYI cognetti does not remove full calcified ligaments. I had to go to hackman to do my revision. I would recommend hackman first. IMO
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Update: in ER again. Sever right eye pain n blurriness. N extreme dizziness n feeling like im going to passout.
Update: im having severe eagles symptoms again. Which i had before my 1st surgery 2 years ago. Dizzy. Nausea. Cant breath. Severe pain pressure right side of face and blurry vision in right eye. Feeling of constant unwell n passing out feelings. Stomach issues. Fast heart rate. The drs are telling me this is coming from the elongated styloid right side. There are some minor pieces of calcified ligaments floating there as well. I dont know if i should worry about those. Trying to set up another surgery. I hope theres a miricale and i could get better for my daughter. Thank u all for ur support during this time. 
. Also the drs stated the blood vessels in my right eye are engorged from vascular compression. No compression found with head straught for CTA but they said i would need an angiogram up groin to find the compression. Also still have heartbeat in left ear.
I’m so sorry that you’re getting symptoms again…sending you gentle hugs & will be praying for you…try & keep yourself together for your little girl 
Update for my eagles diary: the floating pieces in my neck are what my surgeon thinks to be surgical clips from my first surgery with cognetti. Said my issues arent coming from them but from the styloid. Im about a month out to my revision surgery. I sent my CTSCAN with contrast out to eagles surgeons all over the country. N spoke with many. A couple declined me right away bc i already had surgery or they stated they have to leave some of the styloid long (couldnt go back far so they are crossed off my list).
My right styloid is said to be double the length it should be even tho its only measuring approx 2cm. In my case it is almost coming in contact with my C1 and compressing everything in between when i move my head. Im having some severe symptoms. Functioning is very difficult for me. After speaking with many surgeons i scheduled surgery. Its about 1 month away. Im anxiously waiting. I keep counting the days on the calendar over n over.
Im praying my 4th eagles surgery goes well. And theres a miricale that i could get better for my little girl.
FYI my styloid did not grow back. This is where it was left by cognetti. After my 1st surgery he told my husband he had to leave some bc it was too close to my spine. He also left in the calcified ligaments to hyoid bc he said too many nerves in that area he couldnt get it out. I had hyoid revision in august which went well. The pain is gone from hyoid area. Just dealing with terrifying compression symptoms from right styloid.
I will keep you all updated. I appreciate all of your support on this journey.
Thank you for the update, Cupcake5. Praying the next month will fly by! I have a niece who’s having her second baby (C-section) on the same day as you have your ES surgery. It will be a day of new beginnings for both of you!
Glad that you’ve found someone to help you that you’re confident with…Will keep praying for you
@Cupcake5 I am rooting for you!
I saw you just had surgery. Pls keep us updated. I have/had a lot of same symptoms as you. best wishes @EagleInBrooklyn
Hi everyone. Update: i spoke with Dr Patsalides in NYC who specializes in veins. i sent him my CT SCAN WITH CONTRAST. He said my pusatile tinnitus on the left side is coming from my jugular vein on the left being pinched by C1 but the styloid is removed enough on the left (i guess it pushed the vein into c1). My severe symptoms on the right are coming from my right styloid compressing my Jugular between C1 and possibly compressing nerves as well. He said i definitely need my right styloid removed. He also suggested getting C1 taken down. But the only surgeon who said he would do this for me is in CA and would be very difficult for me to get there right now.
He stated if i remove the right styloid its possible that everything starts opening up and the left side can open up as well (and rid me of the pusatile tinnitus). He said if right side styloid removal does not open the left he would recommend having C1 shaved down on the left.
I have read case reports of people having this done but never spoken with anyone who had c1 done. N theres not many drs that i know of who do this.
I have my right styloid removal scheduled. I am just very nervous i hope the surgeon can remove the whole thing. I dont understand why the first surgeon left so much. I never really got a straight answer from him about why some was left. My revision surgeon is stating he will go in directly at skull base so he can get the whole thing out. He seemed confident so i am praying.
My symptoms are dibilitating at this point. Im not really functioning well. On top of the fact that im terrified. The anxiety medicine doesnt really help much. Only helps me get a few hours of sleep at night but during the day i still keep shaking n crying.
I kept calling to see if my surgeon could get me in sooner as i feel my symptoms r an emergency but i guess they never seem to see eagles as an emergency.
Im really praying surgery goes well and i could get better from this to raise my daughter. Im praying for everyone struggling with this. 
Keep hanging on in there Cupcake, it’s been a long journey for you, but hopefully nearly at the end now. Hopefully having the right side will be enough to open everything up & ease symptoms. I did find having my worst side removed helped me lots, I did go on to have the 2nd side done but I think I could’ve lived with just one side done if I’d had to for the vascular symptoms…
We’ve had a few members had their C1 processes shortened as well- can’t remember who did their surgeries though. I’m sure that having the SP removed will help without needing the Cervical process shortened too.
Hope the waiting time goes quickly for you…
Posting an update- notes from vein doctor: (im saying a lot of prayers:pray:t2:)
Bilateral upper jugular venous stenosis
The RIGHT jugular vein is dominant and the stenosis is caused by the stylloid process and the C1 lateral mass.
The LEFT jugular vein is non-dominant and is compressed by the C1 lateral mass (styloid has been removed)
Will have RIGHT styloidectomy soon.
This may help with the LEFT pulsatile tinnitus (diversion of flow)
PLAN
Follow-up with me as needed.
Plan
Health Maintenance, Pulsatile tinnitus
Education provided to patient during visit.; Status:Complete; Done: 26Oct2020
Electronically signed by : INGRID ALVARANGA, N.P.; Oct 26 2020 12:55PM EST (Co-author)
Electronically signed by : ATHOS PATSALIDES, MD; Oct 28 2020 11:31PM EST (Author)
Hi! Hopefully right sided styloidectomy will give relief! What test showed you have compressed jugular by styloid? What Dr is doing your right surgery if you dont mind me asking. And when is it? Soon I hope! I had my visit yesterday with Dr deLacure. He looked at my panoramic x-ray and said my styloids were long and maybe calcified but he was not sure if that was causing my neck pain and head pain‘s and dizziness. He said he does not think that the styloids can press on the arteries. He was very nice and thorough and said it if I wanted to surgery he would do it but he couldn’t guarantee any outcome for the headaches or dizziness. He sent me to an otolaryngologists in the building and he sent me to a neurologist at NYU who I am going to see in February. So I’m not sure what to do at this point. He did not want to do any other test. I’ve never had a CT of the back my head and neck nobody wants to do it.
A CT with contrast would show if there’s compression of any blood vessels. I’m glad that Dr DeLacure will do surgery, & several members have had successful surgeries with him. Unfortunately because of possible legal actions I guess, no doctors will say that surgery will cure ES symptoms, other members have had symptoms such as dizziness & headaches improve with surgery. I’m not sure how you could get a CT with contrast ordered; whether you could through your GP/ PCP? But it is more radiation, so depending on what scans or x-rays you’ve already had, you might want to think about that.