Hey Mark, that’s very generous of you to say. I’m sure in real life we present as an absolute disaster. JC asks if I think he will get better after so long, and you know, I really think he can/will. I’m not a person of faith, but I hold a lot of hope, for everyone on this site.
It’s doubly hard when you don’t have someone to advocate for you, and when you have to deal with your illness while searching for someone who believes you.
Pulsatile tinnitus is your biggest complaint? I’m not diminishing, PT can drive people to insanity. JC’s PT was resolved with surgery, but that’s not always the case. I have spoken with people whose PT continued after the decompression. Remind me, what was Dr. Axon’s view on the surgery?
I believe Dr. Hui, Dr. Patsalides, and Dr. Amans, all in the USA, do work with the veins and PT. Maybe one of them could do a consult and give you an opinion?
This post is a little old, but VDM always did their homework and they recommended this video. Maybe it gives you a hint? Pulsatile tinnitus, Dr Athos Patsalides presentation